Our Members

Member Profiles


Member Profile: IVFB e.V.

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Our Story The initiative for prevention and early detection of pancreatic cancer (IVFB e.V.) was founded in Germany in 2023. The mission of IVFB e.V. is to raise awareness, provide education and advocate for the prevention and early…
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Member Profile: PLANETS Cancer Charity

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Our Story PLANETS started in 2011 with a focus on pancreatic, liver and neuroendocrine tumour patients, initially with small aims to provide support groups and purchase additional equipment for the service. It was quickly realized…
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Member Profile: DOBSLO

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Our Story Their story started in 1986, when the Cancer Patients’ Association of Slovenia (DOBSLO) was launched, first as assistance to women struck with breast cancer. They were granted total support during the time of illness and…
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Member Profile: Pancreatic Cancer Hope Foundation

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  Our Story The Pancreatic Cancer Hope Foundation  is a nonprofit foundation dedicated to raising funding and awareness for pancreatic cancer as well as patient support for patients and their families. They are based out of…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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   Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ…
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Member Profile: Arbeitskreis der Pankreatektomierten e.V. (AdP)

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 Our Story The Arbeitskreis der Pankreatektomierten e. V. (AdP) was founded in 1976 by patients in Heidelberg and has been a registered association since 1979. The AdP is headquartered in Bonn. The AdP will therefore soon be celebrating…
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Member Profile: The Lustgarten Foundation

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Our Story Established in 1998 from a need for better treatment options and outcomes for pancreatic cancer patients and their families, the Lustgarten Foundation continues to accelerate groundbreaking discoveries in understanding,…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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 Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ is helping…
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Member Profile: Hirshberg Foundation for Pancreatic Cancer Research

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In 1997, the Hirshberg Foundation was established to fund groundbreaking scientific research, provide patient education and support, and sustain the hope that this cancer will be eradicated once and for all. To date, four of its five goals…
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Member Profile: The Purple Iris Foundation

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The Purple Iris Foundation, established in 2012 by Christina Parrish, a 16 year survivor of Stage 4 Pancreatic Cancer, is a registered 501(c)(3) organization based in Brewer, Maine. Ongoing Projects The Purple Iris Foundation's dedicated…
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Member Profile: Kelly’s Heroes

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Kelly’s Heroes, founded in 2016, gives pancreatic cancer patients hope to live with pancreatic cancer. Their work is inspired by Steve Kelly, an editor at the Philadelphia Inquirer, much-loved family man and friend to many. After he was…
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Luigino Sala, with a beloved landscape of mountains, the founder of My Everest.

Member Profile: My Everest ODV

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My Everest ODV, standing for "Organizzazione di Volontariato" (Voluntary Organization), is a non-profit association based in Rivolta D'Adda, Italy. Established in 2015 from the idea of Luigino Sala, who was sadly dying of pancreatic cancer,…
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Member Profile: Cancer Society PALEMA

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Cancer Society PALEMA was founded in 2015. People from the cancer profession took the initiative to start PALEMA as there was no association for these diagnoses to which they could refer their patients. They have two areas of focus: First…
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Member Profile: #PurpleOurWorld

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#PurpleOurWorld was founded in October 2014, after the death of wife, mom and sister Rochelle Goulburn. To coincide with the inaugural World Pancreatic Cancer Day, they asked everyone we knew to wear purple and share a picture on social media…
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Member Profile: NIPANC

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Northern Ireland Pancreatic Cancer (NIPANC) was set up in August 2018 and has its roots in a group of people affected by pancreatic cancer coming together for support and to raise funds to promote better diagnosis and treatment for future patients.…
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Member Profile: The Elizabeth Coteman Fund

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  The Elizabeth Coteman Fund was established in 2010 upon the death of beloved wife and mother Elizabeth Coteman from pancreatic cancer, to support those with a diagnosis of pancreatic cancer and their families. The charity also provides…
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Member Profile: Pancreatic Cancer Ireland

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Pancreatic Cancer Ireland was founded in September 2022 by Rachel Duquesnois shortly after losing her wonderful mother, Martina Dunne, to pancreatic cancer. Unfortunately this was not the first time the family was impacted, with two other relatives…
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Member Profile: National Pancreatic Cancer Foundation

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In 2009, Rhonda Williams established the National Pancreatic Cancer Foundation following the tragic loss of a family member to pancreatic cancer. This unfortunate event highlighted the insufficient awareness and funding dedicated to pancreatic…
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Member Profile: Europacolon Portugal

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About Europacolon Portugal Europacolon Portugal, Association for the Support of Patients with Digestive Cancer, is a Private Institution of Social Solidarity, founded in 2006, in Porto, Portugal. They have a total of 1,500 Associates across…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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Pancreatic Cancer Awareness Gibraltar Charitable Trust was founded in February 2018 with a total focus on raising awareness about pancreatic cancer to the public, general practitioners, and other medical professionals in Gibraltar, as well as,…
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Member Profile: Lavlav Foundation

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In 2019, we attended the WPCC Annual Meeting in Miami for the first time. This was our initial exposure to the incredible work of the foundations that help pancreatic cancer patients and their families. As a result, we quickly realized that…
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Member Profile: Pants Off Racing

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History Pants Off Racing (“POR”) was founded in 2012. Our organization had been active for many years before, but we didn’t register as a 501c3 until 2012. POR was formed because Nancy “Pants” Amato was diagnosed with pancreatic…
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Member Profile: Let’s Win Pancreatic Cancer

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WPCC story Let’s Win Pancreatic Cancer is an online platform that breaks down barriers between patients, doctors, and researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the…
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Member Profile: DiCE

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Digestive Cancers Europe (DiCE) is a European non-profit umbrella organization of nearly 40 national Member Organizations representing patients with digestive cancer — colorectal, gastric, liver, oesophageal, pancreatic, and rare cancers. DiCE…
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Member Profile: The John E. Sabga Foundation

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The John E. Sabga Foundation is a non-profit foundation started in Trinidad and Tobago. The Foundation honors John Edmond Sabga who died at the age of 56 in January 2017 after a valiant 10-month battle with pancreatic cancer. John was a well-loved…
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Member Profile: The Griffith Family Foundation & Sideline Cancer

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The history of the Griffith Family Foundation is a tragic but inspiring chapter in the story of Greg and Cathy Griffith. Greg passed at age 50 after a heroic 19-month battle with pancreatic cancer. It was two family friends — siblings, Amanda…
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Member Profile: The Korean Pancreatic Cancer Network

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In 2015, the Korean Pancreatic Cancer Network (KPCN) was founded by a group of pancreatic surgeons in Korea with the common goal of increasing social awareness of pancreatic cancer. The mission of the KPCN is to promote prevention and early…
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Member Profile: Associazione Nastro Viola

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Associazione Nastro Viola was founded in February 2015 by Francesca Mella and four other people that all lost relatives to pancreatic cancer. At the time, none of them had heard of pancreatic cancer and were shocked when they lost their family…
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Member Profile: The Gastrointestinal Society

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The GI (Gastrointestinal) Society is a national charity formed in 2008 on the groundwork of its partner organization, the Canadian Society of Intestinal Research (CSIR), which was founded in Vancouver in 1976. We receive national and international…
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Member Profile: PanKind

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About PanKind PanKind, The Australian Pancreatic Cancer Foundation, is exclusively dedicated to pancreatic cancer with a mission to triple the survival rate by 2030 and dramatically increase the quality of life for patients and their families.…
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Member Profile: The Rolfe Pancreatic Cancer Foundation

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The Rolfe Pancreatic Cancer Foundation was founded in 1999 by friends and family in honor of Michael Rolfe. What started in a living room as a small, community effort has grown into an impactful organization in the Midwest and together we are…
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Member Profile: Fondation A.R.CA.D.

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Fondation A.R.CA.D. was founded in France in 2006 by Pr Aimery de Gramont and granted the legal status of "publicly recognized foundation" by the French government in December of the same year. While there are a number of major organizations…
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Member Profile: Robert E. Reed Gastrointestinal Oncology Research Foundation

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Pictured above: The 2021-2022 Reed GI Foundation Junior Board The Robert E. Reed Gastrointestinal Oncology Research Foundation was formed in 2002 while Robert Reed was battling pancreatic cancer. Mr. Reed felt strongly that creating a focus…
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Member Profile: EuropaColon Poland

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Pictured Above: Founder Iga Rawicka EuropaColon Polska was established in March of 2017 and is an affiliate member of Digestive Cancers Europe. Our goal is to increase awareness of digestive cancers amongst the general public. Previously…
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Member Profile: Charlotte Pancreatic Cancer Alliance

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Latest research shows that 97% of Americans now have a smartphone.  This represents nearly 300 million devices and a level of connectivity never seen before. Yet despite this unprecedented level of connectivity and access to information,…
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Member Profile: Dawn Hill Fight Foundation

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Pictured above: Participants in the annual Dawn’s 5k Dash In 2016, Dawn Hill was diagnosed with Stage 4 pancreatic cancer at the age of 47. After obtaining a second option, she began a clinical trial at Johns Hopkins Hospital in Baltimore,…
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Member Profile: RicerChiAmo Onlus

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One of the founders of RicerChiAmo Onlus, Gian Luca Baiocchi, speaking at their annual Fun for Charity event in 2019. RicerChiAmo Onlus is based in Brescia, Italy, and was founded in 2016 by Gian Luca Baiocchi (ASST Spedali Civili di Bescia…
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Member Profile: PASYKAF

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PASYKAF Staff Group Photo PASYKAF, The Cyprus Association of Cancer Patients and Friends was founded in 1986, by 21 people with cancer experience. The voice of our association was first heard through the words of Dr Anna Achilleoudi, founder…
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Member Profile: Michael W. Oglesby Foundation

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Participants in Michael W. Oglesby Foundation’s annual Faj Squad 5k walk/run that has raised over $40,000 for pancreatic cancer research in the last 5 years. When and why was your organization founded? Our brother, Mike, was born and…
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Member Profile: EuropaColon Portugal

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EuropaColon Portugal was created in 2006 in Porto with the primary function to help reduce the number of deaths from intestinal cancer and to provide support to patients and family members and improve their quality of life. Objectives…
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Member Profile: PanKind

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PanKind unites the nation with their flagship Put Your Foot Down walks in 7 cities across Australia Avner Nahmani and his wife Caroline established the Foundation in 2007 after Avner was diagnosed with inoperable pancreatic cancer. Caroline,…
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Member Profile: The Gastrointestinal Society

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The Gastrointestinal Society is a Canadian registered charity that has roots in its partner organization, the Canadian Society of Intestinal Research (CSIR), founded in 1976 in Vancouver, British Columbia. Our organizations work together providing…
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Member Profile: The Seena Magowitz Foundation

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Roger Magowitz started the Seena Magowitz Foundation in 2002 to honor his mother, Seena Magowitz. Since then, the Foundation has raised over twelve million dollars for pancreatic cancer research. The $12 Million primarily has funded Pilot Studies…
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Member Profile: Purple Pansies

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Purple Pansies team during their 2020 virtual gala event that raised over $1.2 million. Their motto for the gala was, "Cancer Doesn’t Stop and Neither Do We." Purple Pansies was founded in 2009 following the death of Maria Fundora’s mother…
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Member Profile: Asociación Cáncer de Páncreas (ACANPAN)

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For the fifth consecutive year, the Pancreatic Cancer Association (ACANPAN) and the Spanish Pancreatology Association (AESPANC) announce the Carmen Delgado / Miguel Pérez-Mateo Research Grants against pancreatic cancer. Asociacià³n Cà¡ncer…
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Member Profile: LoveLove

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Israeli team running to defeat Pancreatic Cancer. The Israeli Association for Pancreatic Cancer is a non-profit organization. The association was founded in August 2019, by a group of volunteers who have been exposed to pancreatic cancer, in…
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Member Profile: KEFI

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The KEFI team at an event to raise cancer awareness.   The Athens Association of Cancer Patients “KEFI” was established in spring 2004 by cancer survivors who decided to dedicate their time and spirit to support cancer patients and…
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Member Profile: Oltre la Ricerca

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The Oltre la Ricerca Team Oltre la ricerca is a non profit organization founded in Rimini (northern Italy) in 2012 by Francesca Gabellini, after the loss of her husband Luca, affected by pancreatic cancer. Luca was 42 years old when he passed…
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Member Profile: Northern Ireland Pancreatic Cancer (NIPanC )

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August 2018 NIPanC launch at The Mater Hospital Belfast attended by Jamie Dornan Patron, James Dornan President & Jess Dornan Lynas   NIPanC was launched in 2018 by our patron, Jamie Dornan, who had himself lost his mother, Lorna,…
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Member Profile: ELLOK

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The Board of ELLOK and representatives of its member organizations met with the President of the Hellenic Republic Prokopios Pavlopoulos.   Hellenic Cancer Federation — ELLOK is an “umbrella” organization established in 2016 aiming…
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Member Profile: EuropaColon Slovakia

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EuropaColon Slovakia was founded in May 2007 as a nonprofit organization for patients with colorectal carcinoma and their families. Epidemiological data for cancer and years of experiences with patients motivated the organization to expand its…
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Member Profile: The Swiss Pancreas Foundation

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The Swiss Pancreas Foundation (SPF), headquartered in Bern, Switzerland, is an independent non-profit providing help for those suffering from pancreatic diseases. Founded in 2007, SPF has the following goals: To advise and inform the Swiss…
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Member Profile: Inspire2Live

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Inspire2Live (I2L), located in the Netherlands, is an international movement founded in 2011 by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action. All these charities are targeted toward…
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Member Profile: #PurpleOurWorld

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Some of the #PurpleOurWorld family with Ambassador Tracey Spicer and Sydney newsreader Peter Overton in front of the Opera House, which turned purple for World Pancreatic Cancer Day!   #PurpleOurWorld was founded in October 2014,…
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Member Profile: WINGS OF HOPE FOR PANCREATIC CANCER RESEARCH

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From left: Cathy Noon, pancreatic cancer survivor; Dr. Marco Del Chiaro, Division Chief, Surgical Oncology Clinical Director, Hepato-Pancreatic-Biliary Program, University of Colorado; Maureen Shul, WINGS OF HOPE founder; and Dr. Richard Schulick,…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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American singer/songwriter Erin Willett with Pancreatic Cancer Awareness Gibraltar Founder Louis Baldachino. Willett traveled to Gibraltar in November 2018 to perform her popular song, “Hope’s Alive,” during the organization’s “Purple…
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Member Profile: Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation

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Front, left to right: Dr. Yolonda Spooner and Bertha Howard. Back, left to right: Sgt. Elvin Howard, Jr., Dr. Peter Bostick, Wendell Mack, Veronica Howard Sizer, Dr. Monteic A. Sizer, and Edward Ball, Jr Elvin Howard, Sr. Pancreatic Cancer…
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Member Profile: Neuroendocrine Cancer Awareness Network

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Supporters at a Neuroendocrine Cancer Awareness Network walk. The Neuroendocrine Cancer Awareness Network (NCAN) was founded in 2003 in New York (U.S.) after founder Maryann Wahmann was diagnosed with a rare neuroendocrine (NET) cancer. Maryann…
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Member Profile: Kenner Family Research Fund

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Kenner Family Research Fund (KFRF) was established in 2013 by family and friends in memory of Peter Kenner, who died just two months following his diagnosis of pancreatic neuroendocrine cancer. KFRF is committed to supporting the development…
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Organizations Around the World Create Change for Pancreatic Cancer

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Coalition members pose for a group shot. Nearly 50 organizations attended the WPCC meeting this year. Nearly 50 organizations from across the world convened in Coral Gables, Fla., May 7-9, 2019 for the fourth annual World Pancreatic Cancer…
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Member Profile: Ron Foley Foundation

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The Ron Foley Foundation, based in Connecticut, USA, was established by Barbara Foley in 2010 in memory of her husband Ron Foley, who died of pancreatic cancer in 2005.   The mission of the Foundation is to alleviate human suffering…
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Member Profile: Avner Pancreatic Cancer Foundation

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The Avner Pancreatic Cancer Foundation’s "Put Your Foot Down" Melbourne walk in May draws a large crowd of supporters. The Avner Pancreatic Cancer Foundation began as Avner’s Fund after co-founder Avner Nahmani was diagnosed with the…
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Member Profile: Europacolon Slovenija

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Members of the EuropaColon Slovenija board of directors EuropaColon Slovenija, founded in 2007, is part of an umbrella organization called Digestive Cancers Europe. It is located in Ljubljana, the capital of Slovenia. As evident from the…
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Member Profile: Project Purple

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Project Purple is a Connecticut-based national nonprofit dedicated to providing financial aid to pancreatic cancer patients and donating research grants to centers with a focus on early detection. Today, the charity is the No. 1 provider…
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Member Profile: Pancare Foundation

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Pancare Foundation in Australia was established in 2011 to improve patient outcomes in a variety of ways. Its flagship event is the Walk for Hope Born out of a desire to see better outcomes for people fighting pancreatic cancer, Australia’s…
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Member Profile: Korean Pancreatic Cancer Network

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Korean Pancreatic Cancer Network (KPCN) was founded in 2015 by pancreatic surgeons in Korea. The organization’s leaders have come to realize that fighting pancreatic cancer in hospitals and operating rooms is not enough. Public awareness of…
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Member Profile: Pancreatic Cancer Asociation In Spain

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The Cities Race against Pancreatic Cancer is a fundraiser for Pancreatic Cancer Asociation in Spain. Pancreatic Cancer Asociation in Spain began in January 2015 in memory of the late Carmen Delgado and Olga Lamarca, both of whom battled pancreatic…
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Member Profile: Nadia Valsecchi Foundation

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Nadia Valsecchi Foundation in Italy was established in 2015. Pictured: A fundraiser event. Nadia Valsecchi Foundation is an Italian organization established in 2015 by the Valsecchi family in memory of Nadia, who lost her battle against pancreatic…
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Member Profile: Pancreatic Cancer UK

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The vision of Pancreatic Cancer UK is that everyone with pancreatic cancer survives to live long and well. Each year, Pancreatic Cancer UK helps thousands of people across the UK by providing information and support, funding world class research…
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Member Profile: The Alliance of Families Fighting Pancreatic Cancer

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From left, back: AFFPC Board member Ric Fera with Dr. A. James Moser, co-director of Pancreas Liver Institute and Pancreatic Cancer Research Program at Beth Israel Deaconess Medical Center and associate professor of surgery, Harvard Medical…
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Member Profile: The John E. Sabga Foundation for Pancreatic Cancer

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Natalie Sabga with her children, Amanda and Matthew, at The HOPE Gala fundraiser in February 2018 for the John E. Sabga Foundation. The John E. Sabga (JES) Foundation for Pancreatic Cancer was founded in November 2017 in Trinidad and Tobago…
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Pancreatic Cancer Coalition Collaborates to Combat World’s Toughest Cancer

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If you look up collaboration in the dictionary, this is what you’ll get: col·lab·o·ra·tion noun 1. the action of working with someone to produce or create something. If you add the World Pancreatic Cancer Coalition’s (WPCC)…
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Member Profile: Pancreatic Cancer Action Network

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Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In our urgent mission to save lives, we attack pancreatic cancer on all fronts: research, clinical initiatives, patient services…
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Member Profile: Pancreatic Cancer Action

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Pancreatic Cancer Action is a UK charity whose aim is to save lives by focusing on improving early diagnosis of pancreatic cancer. The charity was set up by a pancreatic cancer survivor, Ali Stunt, three years after her diagnosis in 2007. …
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Member Profile: Pancreaskreft Nettverk Norge

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Pancreaskreft Nettverk Norge (Norway) was established just over a year ago, following an initiative to arrange a seminar on World Pancreatic Cancer Day (WPCD) 2016. The network was a joint initiative by healthcare personnel, patients…
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Member Profile: Pancreatic Cancer Canada

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Pancreatic Cancer Canada (PCCF) is focused on fighting pancreatic cancer through research, awareness, education and advocacy. Its goals are to improve overall patient survival rates and support those who are affected by this deadly disease.…
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Member Profile: EuropaColon

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EuropaColon was launched in 2004 by Jola Gore Booth, who responded to a call to support colorectal cancer patients outside of the United Kingdom. For the next 10 years, the organization grew across Europe and established a reputation for commitment…
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Global Media Goes Purple on World Pancreatic Cancer Day

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Media outlets across the globe helped raise awareness of the symptoms and risks associated with the world’s toughest cancer on World Pancreatic Cancer Day, inspiring people to take action and Demand Better. For Patients. For Survival. Below…
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World Pancreatic Cancer Coalition Demands Better in New Video

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Several leaders from the World Pancreatic Cancer Coalition (WPCC) are featured in a new video sharing why and how they Demand Better. For Patients. For Survival, today, World Pancreatic Cancer Day. Featured in the video: Julie Fleshman,…
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Swiss Self-Help Organization Pancreatic Diseases

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The SSP Schweizer Selbsthilfeorganisation Pankreaserkrankungen (Swiss Self-Help Organization Pancreatic Diseases) was founded in 1998 by Conrad Rytz to provide medical information concerning pancreatic diseases and the available therapies.…
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Member Profile: JCM Foundation

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Joseph C. Monastra passed away April 4, 2002, only four short weeks after being diagnosed with pancreatic cancer.  In honor of Monastra’s memory, his family established the Joseph C. Monastra (JCM) Foundation for Pancreatic Cancer Research,…
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Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer)

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The first Austrian patient advocacy group dedicated solely to pancreatic cancer, Selbsthilfegruppe Pankreaskarzinom was founded in 2016 by Michaela Hartenstein. Two years after the death of her mom — she was diagnosed with pancreatic cancer…
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Craig’s Cause Pancreatic Cancer Society

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              Since its inception, this grassroots organization has grown into a national charitable society recognized for its national education and awareness campaigns and for supporting…
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Member Profile: TEB e.V. Selbsthilfe (Germany)

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TEB e.V. Selbsthilfe was founded by Katharina Stang in 2006 with the aim of providing support to people with pancreatic diseases and their loved ones, as well as education, advice and assistance for their condition. The German acronym “TEB”…
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Global Meeting Generates Progress, Unity and Inspiration

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Montreal, Canada welcomed more than 80 attendees from more than 20 countries to the second annual World Pancreatic Cancer Coalition (WPCC) meeting May 2 — 5, 2017. “The energy, momentum and enthusiasm at this year’s meeting was extremely…
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Member Profile: Pancreatic Cancer Scotland

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Pancreatic Cancer Scotland was formed in 2010 by a group of patients, caregivers, nurses and doctors in Scotland to share hope, knowledge and action in the battle against pancreatic cancer. The team at Pancreatic Cancer Scotland works…
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Bienvenue au Canada: Montreal Welcomes Our Second Annual Meeting May 2-5

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More than 40 pancreatic cancer member organizations representing 20 countries in our global alliance are expected to attend the second annual World Pancreatic Cancer Coalition (WPCC) meeting next week in host city Montreal, Canada. The two-day…
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LET’S WIN!

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Recognizing that there is an urgent need for pancreatic cancer patients to communicate amongst themselves and with the medical community about potentially life-changing non-standard of care treatments and clinical trials, Let’s Win was launched…
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Member Highlight: The National Pancreas Foundation

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The National Pancreas Foundation (NPF) is celebrating its 20th anniversary, having been created in 1997. The NPF was co-founded by Jane Holt, a pancreatitis patient, and Patter Birsic, who lost her sister-in-law to pancreatic cancer. The…
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Honoring the life of Anne Glauber, co-founder of Coalition member Let’s Win!

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It is with much regret that I share that Anne Glauber, the co-founder of our fellow World Pancreatic Cancer Coalition member, Let’s Win!, died yesterday after a three-year battle with pancreatic cancer.  Our Coalition, and the pancreatic…
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Member Highlight: Pancreatic Cancer Spain

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Pancreatic Cancer Spain was founded in 2014 as a chapter of GEPAC, the Spanish Cancer Patients Group. Its mission is to ensure that pancreatic cancer patients have timely and affordable access to the best treatment and care available, to…
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Member Highlight: Operation Henry Trust

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The Operation Henry Trust, based in England, was founded in 2001 by David Snelling, who wanted to do something to help pancreatic cancer patients after his father was diagnosed. Upon completing the Santiago de Compestela Walk across Spain…
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Member Highlight: Associazione Nastro Viola

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Associazione Nastro Viola (“Purple Ribbon” Charity) was founded in February 2015 by five people who lost family members to pancreatic cancer. None of the founding members had ever experienced a disease so devastating or seen…
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Member Highlight: PanCAN Japan

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PanCAN Japan, headed by President Yoshi Majima and based in Tokyo, was formed in 2006 as an autonomous extension of the Pancreatic Cancer Action Network. Like the U.S.-based Pancreatic Cancer Action Network, PanCAN Japan’s mission is to advance…
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Member Highlight: Pancreasnetvaerket i Danmark

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The Danish pancreatic cancer patient organization Pancreasnetvaerket i Danmark came into being in the spring of 2015, upon the initiative of Mr. and Mrs. Niels-Erik and Gunna Olsen. When Olsen was diagnosed with pancreatic cancer in the fall…
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Member Highlight: Pancreatic Cancer Network South Africa

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Pancreatic Cancer Network South Africa was established in 2014 in honor of Founder Carla Bailey’s late mother and uncle, who both fought the disease bravely. She founded the organization to offer hope and support to those fighting pancreatic…
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After Inaugural Meeting, Focus Shifts to Next Year’s Meeting and World Pancreatic Cancer Day

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The first-ever World Pancreatic Cancer Coalition (WPCC) gathered for its inaugural meeting in Orlando, Fla., May 10-14, bringing together over 50 Coalition members from nearly 20 different countries from around the globe. Though the inaugural…
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Member Profile: IVFB e.V.

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Our Story The initiative for prevention and early detection of pancreatic cancer (IVFB e.V.) was founded in Germany in 2023. The mission of IVFB e.V. is to raise awareness, provide education and advocate for the prevention and early…
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Member Profile: PLANETS Cancer Charity

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Our Story PLANETS started in 2011 with a focus on pancreatic, liver and neuroendocrine tumour patients, initially with small aims to provide support groups and purchase additional equipment for the service. It was quickly realized…
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Member Profile: DOBSLO

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Our Story Their story started in 1986, when the Cancer Patients’ Association of Slovenia (DOBSLO) was launched, first as assistance to women struck with breast cancer. They were granted total support during the time of illness and…
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Member Profile: Pancreatic Cancer Hope Foundation

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  Our Story The Pancreatic Cancer Hope Foundation  is a nonprofit foundation dedicated to raising funding and awareness for pancreatic cancer as well as patient support for patients and their families. They are based out of…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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   Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ…
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Member Profile: Arbeitskreis der Pankreatektomierten e.V. (AdP)

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 Our Story The Arbeitskreis der Pankreatektomierten e. V. (AdP) was founded in 1976 by patients in Heidelberg and has been a registered association since 1979. The AdP is headquartered in Bonn. The AdP will therefore soon be celebrating…
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Member Profile: The Lustgarten Foundation

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Our Story Established in 1998 from a need for better treatment options and outcomes for pancreatic cancer patients and their families, the Lustgarten Foundation continues to accelerate groundbreaking discoveries in understanding,…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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 Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ is helping…
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Member Profile: Hirshberg Foundation for Pancreatic Cancer Research

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In 1997, the Hirshberg Foundation was established to fund groundbreaking scientific research, provide patient education and support, and sustain the hope that this cancer will be eradicated once and for all. To date, four of its five goals…
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Member Profile: The Purple Iris Foundation

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The Purple Iris Foundation, established in 2012 by Christina Parrish, a 16 year survivor of Stage 4 Pancreatic Cancer, is a registered 501(c)(3) organization based in Brewer, Maine. Ongoing Projects The Purple Iris Foundation's dedicated…
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Member Profile: Kelly’s Heroes

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Kelly’s Heroes, founded in 2016, gives pancreatic cancer patients hope to live with pancreatic cancer. Their work is inspired by Steve Kelly, an editor at the Philadelphia Inquirer, much-loved family man and friend to many. After he was…
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Luigino Sala, with a beloved landscape of mountains, the founder of My Everest.

Member Profile: My Everest ODV

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My Everest ODV, standing for "Organizzazione di Volontariato" (Voluntary Organization), is a non-profit association based in Rivolta D'Adda, Italy. Established in 2015 from the idea of Luigino Sala, who was sadly dying of pancreatic cancer,…
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Member Profile: Cancer Society PALEMA

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Cancer Society PALEMA was founded in 2015. People from the cancer profession took the initiative to start PALEMA as there was no association for these diagnoses to which they could refer their patients. They have two areas of focus: First…
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Member Profile: #PurpleOurWorld

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#PurpleOurWorld was founded in October 2014, after the death of wife, mom and sister Rochelle Goulburn. To coincide with the inaugural World Pancreatic Cancer Day, they asked everyone we knew to wear purple and share a picture on social media…
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Member Profile: NIPANC

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Northern Ireland Pancreatic Cancer (NIPANC) was set up in August 2018 and has its roots in a group of people affected by pancreatic cancer coming together for support and to raise funds to promote better diagnosis and treatment for future patients.…
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Member Profile: The Elizabeth Coteman Fund

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  The Elizabeth Coteman Fund was established in 2010 upon the death of beloved wife and mother Elizabeth Coteman from pancreatic cancer, to support those with a diagnosis of pancreatic cancer and their families. The charity also provides…
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Member Profile: Pancreatic Cancer Ireland

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Pancreatic Cancer Ireland was founded in September 2022 by Rachel Duquesnois shortly after losing her wonderful mother, Martina Dunne, to pancreatic cancer. Unfortunately this was not the first time the family was impacted, with two other relatives…
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Member Profile: National Pancreatic Cancer Foundation

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In 2009, Rhonda Williams established the National Pancreatic Cancer Foundation following the tragic loss of a family member to pancreatic cancer. This unfortunate event highlighted the insufficient awareness and funding dedicated to pancreatic…
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Member Profile: Europacolon Portugal

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About Europacolon Portugal Europacolon Portugal, Association for the Support of Patients with Digestive Cancer, is a Private Institution of Social Solidarity, founded in 2006, in Porto, Portugal. They have a total of 1,500 Associates across…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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Pancreatic Cancer Awareness Gibraltar Charitable Trust was founded in February 2018 with a total focus on raising awareness about pancreatic cancer to the public, general practitioners, and other medical professionals in Gibraltar, as well as,…
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Member Profile: Lavlav Foundation

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In 2019, we attended the WPCC Annual Meeting in Miami for the first time. This was our initial exposure to the incredible work of the foundations that help pancreatic cancer patients and their families. As a result, we quickly realized that…
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Member Profile: Pants Off Racing

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History Pants Off Racing (“POR”) was founded in 2012. Our organization had been active for many years before, but we didn’t register as a 501c3 until 2012. POR was formed because Nancy “Pants” Amato was diagnosed with pancreatic…
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Member Profile: Let’s Win Pancreatic Cancer

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WPCC story Let’s Win Pancreatic Cancer is an online platform that breaks down barriers between patients, doctors, and researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the…
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Member Profile: DiCE

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Digestive Cancers Europe (DiCE) is a European non-profit umbrella organization of nearly 40 national Member Organizations representing patients with digestive cancer — colorectal, gastric, liver, oesophageal, pancreatic, and rare cancers. DiCE…
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Member Profile: The John E. Sabga Foundation

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The John E. Sabga Foundation is a non-profit foundation started in Trinidad and Tobago. The Foundation honors John Edmond Sabga who died at the age of 56 in January 2017 after a valiant 10-month battle with pancreatic cancer. John was a well-loved…
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Member Profile: The Griffith Family Foundation & Sideline Cancer

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The history of the Griffith Family Foundation is a tragic but inspiring chapter in the story of Greg and Cathy Griffith. Greg passed at age 50 after a heroic 19-month battle with pancreatic cancer. It was two family friends — siblings, Amanda…
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Member Profile: The Korean Pancreatic Cancer Network

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In 2015, the Korean Pancreatic Cancer Network (KPCN) was founded by a group of pancreatic surgeons in Korea with the common goal of increasing social awareness of pancreatic cancer. The mission of the KPCN is to promote prevention and early…
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Member Profile: Associazione Nastro Viola

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Associazione Nastro Viola was founded in February 2015 by Francesca Mella and four other people that all lost relatives to pancreatic cancer. At the time, none of them had heard of pancreatic cancer and were shocked when they lost their family…
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Member Profile: The Gastrointestinal Society

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The GI (Gastrointestinal) Society is a national charity formed in 2008 on the groundwork of its partner organization, the Canadian Society of Intestinal Research (CSIR), which was founded in Vancouver in 1976. We receive national and international…
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Member Profile: PanKind

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About PanKind PanKind, The Australian Pancreatic Cancer Foundation, is exclusively dedicated to pancreatic cancer with a mission to triple the survival rate by 2030 and dramatically increase the quality of life for patients and their families.…
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Member Profile: The Rolfe Pancreatic Cancer Foundation

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The Rolfe Pancreatic Cancer Foundation was founded in 1999 by friends and family in honor of Michael Rolfe. What started in a living room as a small, community effort has grown into an impactful organization in the Midwest and together we are…
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Member Profile: Fondation A.R.CA.D.

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Fondation A.R.CA.D. was founded in France in 2006 by Pr Aimery de Gramont and granted the legal status of "publicly recognized foundation" by the French government in December of the same year. While there are a number of major organizations…
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Member Profile: Robert E. Reed Gastrointestinal Oncology Research Foundation

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Pictured above: The 2021-2022 Reed GI Foundation Junior Board The Robert E. Reed Gastrointestinal Oncology Research Foundation was formed in 2002 while Robert Reed was battling pancreatic cancer. Mr. Reed felt strongly that creating a focus…
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Member Profile: EuropaColon Poland

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Pictured Above: Founder Iga Rawicka EuropaColon Polska was established in March of 2017 and is an affiliate member of Digestive Cancers Europe. Our goal is to increase awareness of digestive cancers amongst the general public. Previously…
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Member Profile: Charlotte Pancreatic Cancer Alliance

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Latest research shows that 97% of Americans now have a smartphone.  This represents nearly 300 million devices and a level of connectivity never seen before. Yet despite this unprecedented level of connectivity and access to information,…
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Member Profile: Dawn Hill Fight Foundation

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Pictured above: Participants in the annual Dawn’s 5k Dash In 2016, Dawn Hill was diagnosed with Stage 4 pancreatic cancer at the age of 47. After obtaining a second option, she began a clinical trial at Johns Hopkins Hospital in Baltimore,…
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Member Profile: RicerChiAmo Onlus

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One of the founders of RicerChiAmo Onlus, Gian Luca Baiocchi, speaking at their annual Fun for Charity event in 2019. RicerChiAmo Onlus is based in Brescia, Italy, and was founded in 2016 by Gian Luca Baiocchi (ASST Spedali Civili di Bescia…
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Member Profile: PASYKAF

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PASYKAF Staff Group Photo PASYKAF, The Cyprus Association of Cancer Patients and Friends was founded in 1986, by 21 people with cancer experience. The voice of our association was first heard through the words of Dr Anna Achilleoudi, founder…
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Member Profile: Michael W. Oglesby Foundation

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Participants in Michael W. Oglesby Foundation’s annual Faj Squad 5k walk/run that has raised over $40,000 for pancreatic cancer research in the last 5 years. When and why was your organization founded? Our brother, Mike, was born and…
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Member Profile: EuropaColon Portugal

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EuropaColon Portugal was created in 2006 in Porto with the primary function to help reduce the number of deaths from intestinal cancer and to provide support to patients and family members and improve their quality of life. Objectives…
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Member Profile: PanKind

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PanKind unites the nation with their flagship Put Your Foot Down walks in 7 cities across Australia Avner Nahmani and his wife Caroline established the Foundation in 2007 after Avner was diagnosed with inoperable pancreatic cancer. Caroline,…
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Member Profile: The Gastrointestinal Society

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The Gastrointestinal Society is a Canadian registered charity that has roots in its partner organization, the Canadian Society of Intestinal Research (CSIR), founded in 1976 in Vancouver, British Columbia. Our organizations work together providing…
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Member Profile: The Seena Magowitz Foundation

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Roger Magowitz started the Seena Magowitz Foundation in 2002 to honor his mother, Seena Magowitz. Since then, the Foundation has raised over twelve million dollars for pancreatic cancer research. The $12 Million primarily has funded Pilot Studies…
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Member Profile: Purple Pansies

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Purple Pansies team during their 2020 virtual gala event that raised over $1.2 million. Their motto for the gala was, "Cancer Doesn’t Stop and Neither Do We." Purple Pansies was founded in 2009 following the death of Maria Fundora’s mother…
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Member Profile: Asociación Cáncer de Páncreas (ACANPAN)

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For the fifth consecutive year, the Pancreatic Cancer Association (ACANPAN) and the Spanish Pancreatology Association (AESPANC) announce the Carmen Delgado / Miguel Pérez-Mateo Research Grants against pancreatic cancer. Asociacià³n Cà¡ncer…
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Member Profile: LoveLove

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Israeli team running to defeat Pancreatic Cancer. The Israeli Association for Pancreatic Cancer is a non-profit organization. The association was founded in August 2019, by a group of volunteers who have been exposed to pancreatic cancer, in…
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Member Profile: KEFI

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The KEFI team at an event to raise cancer awareness.   The Athens Association of Cancer Patients “KEFI” was established in spring 2004 by cancer survivors who decided to dedicate their time and spirit to support cancer patients and…
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Member Profile: Oltre la Ricerca

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The Oltre la Ricerca Team Oltre la ricerca is a non profit organization founded in Rimini (northern Italy) in 2012 by Francesca Gabellini, after the loss of her husband Luca, affected by pancreatic cancer. Luca was 42 years old when he passed…
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Member Profile: Northern Ireland Pancreatic Cancer (NIPanC )

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August 2018 NIPanC launch at The Mater Hospital Belfast attended by Jamie Dornan Patron, James Dornan President & Jess Dornan Lynas   NIPanC was launched in 2018 by our patron, Jamie Dornan, who had himself lost his mother, Lorna,…
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Member Profile: ELLOK

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The Board of ELLOK and representatives of its member organizations met with the President of the Hellenic Republic Prokopios Pavlopoulos.   Hellenic Cancer Federation — ELLOK is an “umbrella” organization established in 2016 aiming…
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Member Profile: EuropaColon Slovakia

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EuropaColon Slovakia was founded in May 2007 as a nonprofit organization for patients with colorectal carcinoma and their families. Epidemiological data for cancer and years of experiences with patients motivated the organization to expand its…
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Member Profile: The Swiss Pancreas Foundation

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The Swiss Pancreas Foundation (SPF), headquartered in Bern, Switzerland, is an independent non-profit providing help for those suffering from pancreatic diseases. Founded in 2007, SPF has the following goals: To advise and inform the Swiss…
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Member Profile: Inspire2Live

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Inspire2Live (I2L), located in the Netherlands, is an international movement founded in 2011 by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action. All these charities are targeted toward…
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Member Profile: #PurpleOurWorld

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Some of the #PurpleOurWorld family with Ambassador Tracey Spicer and Sydney newsreader Peter Overton in front of the Opera House, which turned purple for World Pancreatic Cancer Day!   #PurpleOurWorld was founded in October 2014,…
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Member Profile: WINGS OF HOPE FOR PANCREATIC CANCER RESEARCH

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From left: Cathy Noon, pancreatic cancer survivor; Dr. Marco Del Chiaro, Division Chief, Surgical Oncology Clinical Director, Hepato-Pancreatic-Biliary Program, University of Colorado; Maureen Shul, WINGS OF HOPE founder; and Dr. Richard Schulick,…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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American singer/songwriter Erin Willett with Pancreatic Cancer Awareness Gibraltar Founder Louis Baldachino. Willett traveled to Gibraltar in November 2018 to perform her popular song, “Hope’s Alive,” during the organization’s “Purple…
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Member Profile: Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation

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Front, left to right: Dr. Yolonda Spooner and Bertha Howard. Back, left to right: Sgt. Elvin Howard, Jr., Dr. Peter Bostick, Wendell Mack, Veronica Howard Sizer, Dr. Monteic A. Sizer, and Edward Ball, Jr Elvin Howard, Sr. Pancreatic Cancer…
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Member Profile: Neuroendocrine Cancer Awareness Network

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Supporters at a Neuroendocrine Cancer Awareness Network walk. The Neuroendocrine Cancer Awareness Network (NCAN) was founded in 2003 in New York (U.S.) after founder Maryann Wahmann was diagnosed with a rare neuroendocrine (NET) cancer. Maryann…
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Member Profile: Kenner Family Research Fund

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Kenner Family Research Fund (KFRF) was established in 2013 by family and friends in memory of Peter Kenner, who died just two months following his diagnosis of pancreatic neuroendocrine cancer. KFRF is committed to supporting the development…
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Organizations Around the World Create Change for Pancreatic Cancer

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Coalition members pose for a group shot. Nearly 50 organizations attended the WPCC meeting this year. Nearly 50 organizations from across the world convened in Coral Gables, Fla., May 7-9, 2019 for the fourth annual World Pancreatic Cancer…
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Member Profile: Ron Foley Foundation

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The Ron Foley Foundation, based in Connecticut, USA, was established by Barbara Foley in 2010 in memory of her husband Ron Foley, who died of pancreatic cancer in 2005.   The mission of the Foundation is to alleviate human suffering…
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Member Profile: Avner Pancreatic Cancer Foundation

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The Avner Pancreatic Cancer Foundation’s "Put Your Foot Down" Melbourne walk in May draws a large crowd of supporters. The Avner Pancreatic Cancer Foundation began as Avner’s Fund after co-founder Avner Nahmani was diagnosed with the…
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Member Profile: Europacolon Slovenija

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Members of the EuropaColon Slovenija board of directors EuropaColon Slovenija, founded in 2007, is part of an umbrella organization called Digestive Cancers Europe. It is located in Ljubljana, the capital of Slovenia. As evident from the…
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Member Profile: Project Purple

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Project Purple is a Connecticut-based national nonprofit dedicated to providing financial aid to pancreatic cancer patients and donating research grants to centers with a focus on early detection. Today, the charity is the No. 1 provider…
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Member Profile: Pancare Foundation

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Pancare Foundation in Australia was established in 2011 to improve patient outcomes in a variety of ways. Its flagship event is the Walk for Hope Born out of a desire to see better outcomes for people fighting pancreatic cancer, Australia’s…
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Member Profile: Korean Pancreatic Cancer Network

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Korean Pancreatic Cancer Network (KPCN) was founded in 2015 by pancreatic surgeons in Korea. The organization’s leaders have come to realize that fighting pancreatic cancer in hospitals and operating rooms is not enough. Public awareness of…
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Member Profile: Pancreatic Cancer Asociation In Spain

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The Cities Race against Pancreatic Cancer is a fundraiser for Pancreatic Cancer Asociation in Spain. Pancreatic Cancer Asociation in Spain began in January 2015 in memory of the late Carmen Delgado and Olga Lamarca, both of whom battled pancreatic…
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Member Profile: Nadia Valsecchi Foundation

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Nadia Valsecchi Foundation in Italy was established in 2015. Pictured: A fundraiser event. Nadia Valsecchi Foundation is an Italian organization established in 2015 by the Valsecchi family in memory of Nadia, who lost her battle against pancreatic…
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Member Profile: Pancreatic Cancer UK

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The vision of Pancreatic Cancer UK is that everyone with pancreatic cancer survives to live long and well. Each year, Pancreatic Cancer UK helps thousands of people across the UK by providing information and support, funding world class research…
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Member Profile: The Alliance of Families Fighting Pancreatic Cancer

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From left, back: AFFPC Board member Ric Fera with Dr. A. James Moser, co-director of Pancreas Liver Institute and Pancreatic Cancer Research Program at Beth Israel Deaconess Medical Center and associate professor of surgery, Harvard Medical…
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Member Profile: The John E. Sabga Foundation for Pancreatic Cancer

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Natalie Sabga with her children, Amanda and Matthew, at The HOPE Gala fundraiser in February 2018 for the John E. Sabga Foundation. The John E. Sabga (JES) Foundation for Pancreatic Cancer was founded in November 2017 in Trinidad and Tobago…
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Pancreatic Cancer Coalition Collaborates to Combat World’s Toughest Cancer

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If you look up collaboration in the dictionary, this is what you’ll get: col·lab·o·ra·tion noun 1. the action of working with someone to produce or create something. If you add the World Pancreatic Cancer Coalition’s (WPCC)…
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Member Profile: Pancreatic Cancer Action Network

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Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In our urgent mission to save lives, we attack pancreatic cancer on all fronts: research, clinical initiatives, patient services…
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Member Profile: Pancreatic Cancer Action

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Pancreatic Cancer Action is a UK charity whose aim is to save lives by focusing on improving early diagnosis of pancreatic cancer. The charity was set up by a pancreatic cancer survivor, Ali Stunt, three years after her diagnosis in 2007. …
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Member Profile: Pancreaskreft Nettverk Norge

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Pancreaskreft Nettverk Norge (Norway) was established just over a year ago, following an initiative to arrange a seminar on World Pancreatic Cancer Day (WPCD) 2016. The network was a joint initiative by healthcare personnel, patients…
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Member Profile: Pancreatic Cancer Canada

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Pancreatic Cancer Canada (PCCF) is focused on fighting pancreatic cancer through research, awareness, education and advocacy. Its goals are to improve overall patient survival rates and support those who are affected by this deadly disease.…
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Member Profile: EuropaColon

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EuropaColon was launched in 2004 by Jola Gore Booth, who responded to a call to support colorectal cancer patients outside of the United Kingdom. For the next 10 years, the organization grew across Europe and established a reputation for commitment…
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Global Media Goes Purple on World Pancreatic Cancer Day

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Media outlets across the globe helped raise awareness of the symptoms and risks associated with the world’s toughest cancer on World Pancreatic Cancer Day, inspiring people to take action and Demand Better. For Patients. For Survival. Below…
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World Pancreatic Cancer Coalition Demands Better in New Video

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Several leaders from the World Pancreatic Cancer Coalition (WPCC) are featured in a new video sharing why and how they Demand Better. For Patients. For Survival, today, World Pancreatic Cancer Day. Featured in the video: Julie Fleshman,…
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Swiss Self-Help Organization Pancreatic Diseases

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The SSP Schweizer Selbsthilfeorganisation Pankreaserkrankungen (Swiss Self-Help Organization Pancreatic Diseases) was founded in 1998 by Conrad Rytz to provide medical information concerning pancreatic diseases and the available therapies.…
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Member Profile: JCM Foundation

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Joseph C. Monastra passed away April 4, 2002, only four short weeks after being diagnosed with pancreatic cancer.  In honor of Monastra’s memory, his family established the Joseph C. Monastra (JCM) Foundation for Pancreatic Cancer Research,…
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Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer)

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The first Austrian patient advocacy group dedicated solely to pancreatic cancer, Selbsthilfegruppe Pankreaskarzinom was founded in 2016 by Michaela Hartenstein. Two years after the death of her mom — she was diagnosed with pancreatic cancer…
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Craig’s Cause Pancreatic Cancer Society

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              Since its inception, this grassroots organization has grown into a national charitable society recognized for its national education and awareness campaigns and for supporting…
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Member Profile: TEB e.V. Selbsthilfe (Germany)

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TEB e.V. Selbsthilfe was founded by Katharina Stang in 2006 with the aim of providing support to people with pancreatic diseases and their loved ones, as well as education, advice and assistance for their condition. The German acronym “TEB”…
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Global Meeting Generates Progress, Unity and Inspiration

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Montreal, Canada welcomed more than 80 attendees from more than 20 countries to the second annual World Pancreatic Cancer Coalition (WPCC) meeting May 2 — 5, 2017. “The energy, momentum and enthusiasm at this year’s meeting was extremely…
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Member Profile: Pancreatic Cancer Scotland

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Pancreatic Cancer Scotland was formed in 2010 by a group of patients, caregivers, nurses and doctors in Scotland to share hope, knowledge and action in the battle against pancreatic cancer. The team at Pancreatic Cancer Scotland works…
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Bienvenue au Canada: Montreal Welcomes Our Second Annual Meeting May 2-5

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More than 40 pancreatic cancer member organizations representing 20 countries in our global alliance are expected to attend the second annual World Pancreatic Cancer Coalition (WPCC) meeting next week in host city Montreal, Canada. The two-day…
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LET’S WIN!

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Recognizing that there is an urgent need for pancreatic cancer patients to communicate amongst themselves and with the medical community about potentially life-changing non-standard of care treatments and clinical trials, Let’s Win was launched…
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Member Highlight: The National Pancreas Foundation

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The National Pancreas Foundation (NPF) is celebrating its 20th anniversary, having been created in 1997. The NPF was co-founded by Jane Holt, a pancreatitis patient, and Patter Birsic, who lost her sister-in-law to pancreatic cancer. The…
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Honoring the life of Anne Glauber, co-founder of Coalition member Let’s Win!

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It is with much regret that I share that Anne Glauber, the co-founder of our fellow World Pancreatic Cancer Coalition member, Let’s Win!, died yesterday after a three-year battle with pancreatic cancer.  Our Coalition, and the pancreatic…
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Member Highlight: Pancreatic Cancer Spain

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Pancreatic Cancer Spain was founded in 2014 as a chapter of GEPAC, the Spanish Cancer Patients Group. Its mission is to ensure that pancreatic cancer patients have timely and affordable access to the best treatment and care available, to…
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Member Highlight: Operation Henry Trust

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The Operation Henry Trust, based in England, was founded in 2001 by David Snelling, who wanted to do something to help pancreatic cancer patients after his father was diagnosed. Upon completing the Santiago de Compestela Walk across Spain…
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Member Highlight: Associazione Nastro Viola

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Associazione Nastro Viola (“Purple Ribbon” Charity) was founded in February 2015 by five people who lost family members to pancreatic cancer. None of the founding members had ever experienced a disease so devastating or seen…
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Member Highlight: PanCAN Japan

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PanCAN Japan, headed by President Yoshi Majima and based in Tokyo, was formed in 2006 as an autonomous extension of the Pancreatic Cancer Action Network. Like the U.S.-based Pancreatic Cancer Action Network, PanCAN Japan’s mission is to advance…
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Member Highlight: Pancreasnetvaerket i Danmark

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The Danish pancreatic cancer patient organization Pancreasnetvaerket i Danmark came into being in the spring of 2015, upon the initiative of Mr. and Mrs. Niels-Erik and Gunna Olsen. When Olsen was diagnosed with pancreatic cancer in the fall…
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Member Highlight: Pancreatic Cancer Network South Africa

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Pancreatic Cancer Network South Africa was established in 2014 in honor of Founder Carla Bailey’s late mother and uncle, who both fought the disease bravely. She founded the organization to offer hope and support to those fighting pancreatic…
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After Inaugural Meeting, Focus Shifts to Next Year’s Meeting and World Pancreatic Cancer Day

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The first-ever World Pancreatic Cancer Coalition (WPCC) gathered for its inaugural meeting in Orlando, Fla., May 10-14, bringing together over 50 Coalition members from nearly 20 different countries from around the globe. Though the inaugural…
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Member Profile: IVFB e.V.

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Our Story The initiative for prevention and early detection of pancreatic cancer (IVFB e.V.) was founded in Germany in 2023. The mission of IVFB e.V. is to raise awareness, provide education and advocate for the prevention and early…
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Member Profile: PLANETS Cancer Charity

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Our Story PLANETS started in 2011 with a focus on pancreatic, liver and neuroendocrine tumour patients, initially with small aims to provide support groups and purchase additional equipment for the service. It was quickly realized…
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Member Profile: DOBSLO

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Our Story Their story started in 1986, when the Cancer Patients’ Association of Slovenia (DOBSLO) was launched, first as assistance to women struck with breast cancer. They were granted total support during the time of illness and…
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Member Profile: Pancreatic Cancer Hope Foundation

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  Our Story The Pancreatic Cancer Hope Foundation  is a nonprofit foundation dedicated to raising funding and awareness for pancreatic cancer as well as patient support for patients and their families. They are based out of…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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   Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ…
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Member Profile: Arbeitskreis der Pankreatektomierten e.V. (AdP)

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 Our Story The Arbeitskreis der Pankreatektomierten e. V. (AdP) was founded in 1976 by patients in Heidelberg and has been a registered association since 1979. The AdP is headquartered in Bonn. The AdP will therefore soon be celebrating…
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Member Profile: The Lustgarten Foundation

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Our Story Established in 1998 from a need for better treatment options and outcomes for pancreatic cancer patients and their families, the Lustgarten Foundation continues to accelerate groundbreaking discoveries in understanding,…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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 Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ is helping…
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Member Profile: Hirshberg Foundation for Pancreatic Cancer Research

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In 1997, the Hirshberg Foundation was established to fund groundbreaking scientific research, provide patient education and support, and sustain the hope that this cancer will be eradicated once and for all. To date, four of its five goals…
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Member Profile: The Purple Iris Foundation

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The Purple Iris Foundation, established in 2012 by Christina Parrish, a 16 year survivor of Stage 4 Pancreatic Cancer, is a registered 501(c)(3) organization based in Brewer, Maine. Ongoing Projects The Purple Iris Foundation's dedicated…
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Member Profile: Kelly’s Heroes

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Kelly’s Heroes, founded in 2016, gives pancreatic cancer patients hope to live with pancreatic cancer. Their work is inspired by Steve Kelly, an editor at the Philadelphia Inquirer, much-loved family man and friend to many. After he was…
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Luigino Sala, with a beloved landscape of mountains, the founder of My Everest.

Member Profile: My Everest ODV

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My Everest ODV, standing for "Organizzazione di Volontariato" (Voluntary Organization), is a non-profit association based in Rivolta D'Adda, Italy. Established in 2015 from the idea of Luigino Sala, who was sadly dying of pancreatic cancer,…
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Member Profile: Cancer Society PALEMA

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Cancer Society PALEMA was founded in 2015. People from the cancer profession took the initiative to start PALEMA as there was no association for these diagnoses to which they could refer their patients. They have two areas of focus: First…
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Member Profile: #PurpleOurWorld

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#PurpleOurWorld was founded in October 2014, after the death of wife, mom and sister Rochelle Goulburn. To coincide with the inaugural World Pancreatic Cancer Day, they asked everyone we knew to wear purple and share a picture on social media…
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Member Profile: NIPANC

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Northern Ireland Pancreatic Cancer (NIPANC) was set up in August 2018 and has its roots in a group of people affected by pancreatic cancer coming together for support and to raise funds to promote better diagnosis and treatment for future patients.…
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Member Profile: The Elizabeth Coteman Fund

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  The Elizabeth Coteman Fund was established in 2010 upon the death of beloved wife and mother Elizabeth Coteman from pancreatic cancer, to support those with a diagnosis of pancreatic cancer and their families. The charity also provides…
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Member Profile: Pancreatic Cancer Ireland

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Pancreatic Cancer Ireland was founded in September 2022 by Rachel Duquesnois shortly after losing her wonderful mother, Martina Dunne, to pancreatic cancer. Unfortunately this was not the first time the family was impacted, with two other relatives…
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Member Profile: National Pancreatic Cancer Foundation

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In 2009, Rhonda Williams established the National Pancreatic Cancer Foundation following the tragic loss of a family member to pancreatic cancer. This unfortunate event highlighted the insufficient awareness and funding dedicated to pancreatic…
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Member Profile: Europacolon Portugal

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About Europacolon Portugal Europacolon Portugal, Association for the Support of Patients with Digestive Cancer, is a Private Institution of Social Solidarity, founded in 2006, in Porto, Portugal. They have a total of 1,500 Associates across…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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Pancreatic Cancer Awareness Gibraltar Charitable Trust was founded in February 2018 with a total focus on raising awareness about pancreatic cancer to the public, general practitioners, and other medical professionals in Gibraltar, as well as,…
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Member Profile: Lavlav Foundation

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In 2019, we attended the WPCC Annual Meeting in Miami for the first time. This was our initial exposure to the incredible work of the foundations that help pancreatic cancer patients and their families. As a result, we quickly realized that…
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Member Profile: Pants Off Racing

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History Pants Off Racing (“POR”) was founded in 2012. Our organization had been active for many years before, but we didn’t register as a 501c3 until 2012. POR was formed because Nancy “Pants” Amato was diagnosed with pancreatic…
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Member Profile: Let’s Win Pancreatic Cancer

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WPCC story Let’s Win Pancreatic Cancer is an online platform that breaks down barriers between patients, doctors, and researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the…
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Member Profile: DiCE

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Digestive Cancers Europe (DiCE) is a European non-profit umbrella organization of nearly 40 national Member Organizations representing patients with digestive cancer — colorectal, gastric, liver, oesophageal, pancreatic, and rare cancers. DiCE…
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Member Profile: The John E. Sabga Foundation

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The John E. Sabga Foundation is a non-profit foundation started in Trinidad and Tobago. The Foundation honors John Edmond Sabga who died at the age of 56 in January 2017 after a valiant 10-month battle with pancreatic cancer. John was a well-loved…
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Member Profile: The Griffith Family Foundation & Sideline Cancer

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The history of the Griffith Family Foundation is a tragic but inspiring chapter in the story of Greg and Cathy Griffith. Greg passed at age 50 after a heroic 19-month battle with pancreatic cancer. It was two family friends — siblings, Amanda…
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Member Profile: The Korean Pancreatic Cancer Network

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In 2015, the Korean Pancreatic Cancer Network (KPCN) was founded by a group of pancreatic surgeons in Korea with the common goal of increasing social awareness of pancreatic cancer. The mission of the KPCN is to promote prevention and early…
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Member Profile: Associazione Nastro Viola

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Associazione Nastro Viola was founded in February 2015 by Francesca Mella and four other people that all lost relatives to pancreatic cancer. At the time, none of them had heard of pancreatic cancer and were shocked when they lost their family…
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Member Profile: The Gastrointestinal Society

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The GI (Gastrointestinal) Society is a national charity formed in 2008 on the groundwork of its partner organization, the Canadian Society of Intestinal Research (CSIR), which was founded in Vancouver in 1976. We receive national and international…
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Member Profile: PanKind

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About PanKind PanKind, The Australian Pancreatic Cancer Foundation, is exclusively dedicated to pancreatic cancer with a mission to triple the survival rate by 2030 and dramatically increase the quality of life for patients and their families.…
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Member Profile: The Rolfe Pancreatic Cancer Foundation

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The Rolfe Pancreatic Cancer Foundation was founded in 1999 by friends and family in honor of Michael Rolfe. What started in a living room as a small, community effort has grown into an impactful organization in the Midwest and together we are…
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Member Profile: Fondation A.R.CA.D.

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Fondation A.R.CA.D. was founded in France in 2006 by Pr Aimery de Gramont and granted the legal status of "publicly recognized foundation" by the French government in December of the same year. While there are a number of major organizations…
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Member Profile: Robert E. Reed Gastrointestinal Oncology Research Foundation

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Pictured above: The 2021-2022 Reed GI Foundation Junior Board The Robert E. Reed Gastrointestinal Oncology Research Foundation was formed in 2002 while Robert Reed was battling pancreatic cancer. Mr. Reed felt strongly that creating a focus…
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Member Profile: EuropaColon Poland

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Pictured Above: Founder Iga Rawicka EuropaColon Polska was established in March of 2017 and is an affiliate member of Digestive Cancers Europe. Our goal is to increase awareness of digestive cancers amongst the general public. Previously…
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Member Profile: Charlotte Pancreatic Cancer Alliance

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Latest research shows that 97% of Americans now have a smartphone.  This represents nearly 300 million devices and a level of connectivity never seen before. Yet despite this unprecedented level of connectivity and access to information,…
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Member Profile: Dawn Hill Fight Foundation

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Pictured above: Participants in the annual Dawn’s 5k Dash In 2016, Dawn Hill was diagnosed with Stage 4 pancreatic cancer at the age of 47. After obtaining a second option, she began a clinical trial at Johns Hopkins Hospital in Baltimore,…
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Member Profile: RicerChiAmo Onlus

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One of the founders of RicerChiAmo Onlus, Gian Luca Baiocchi, speaking at their annual Fun for Charity event in 2019. RicerChiAmo Onlus is based in Brescia, Italy, and was founded in 2016 by Gian Luca Baiocchi (ASST Spedali Civili di Bescia…
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Member Profile: PASYKAF

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PASYKAF Staff Group Photo PASYKAF, The Cyprus Association of Cancer Patients and Friends was founded in 1986, by 21 people with cancer experience. The voice of our association was first heard through the words of Dr Anna Achilleoudi, founder…
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Member Profile: Michael W. Oglesby Foundation

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Participants in Michael W. Oglesby Foundation’s annual Faj Squad 5k walk/run that has raised over $40,000 for pancreatic cancer research in the last 5 years. When and why was your organization founded? Our brother, Mike, was born and…
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Member Profile: EuropaColon Portugal

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EuropaColon Portugal was created in 2006 in Porto with the primary function to help reduce the number of deaths from intestinal cancer and to provide support to patients and family members and improve their quality of life. Objectives…
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Member Profile: PanKind

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PanKind unites the nation with their flagship Put Your Foot Down walks in 7 cities across Australia Avner Nahmani and his wife Caroline established the Foundation in 2007 after Avner was diagnosed with inoperable pancreatic cancer. Caroline,…
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Member Profile: The Gastrointestinal Society

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The Gastrointestinal Society is a Canadian registered charity that has roots in its partner organization, the Canadian Society of Intestinal Research (CSIR), founded in 1976 in Vancouver, British Columbia. Our organizations work together providing…
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Member Profile: The Seena Magowitz Foundation

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Roger Magowitz started the Seena Magowitz Foundation in 2002 to honor his mother, Seena Magowitz. Since then, the Foundation has raised over twelve million dollars for pancreatic cancer research. The $12 Million primarily has funded Pilot Studies…
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Member Profile: Purple Pansies

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Purple Pansies team during their 2020 virtual gala event that raised over $1.2 million. Their motto for the gala was, "Cancer Doesn’t Stop and Neither Do We." Purple Pansies was founded in 2009 following the death of Maria Fundora’s mother…
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Member Profile: Asociación Cáncer de Páncreas (ACANPAN)

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For the fifth consecutive year, the Pancreatic Cancer Association (ACANPAN) and the Spanish Pancreatology Association (AESPANC) announce the Carmen Delgado / Miguel Pérez-Mateo Research Grants against pancreatic cancer. Asociacià³n Cà¡ncer…
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Member Profile: LoveLove

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Israeli team running to defeat Pancreatic Cancer. The Israeli Association for Pancreatic Cancer is a non-profit organization. The association was founded in August 2019, by a group of volunteers who have been exposed to pancreatic cancer, in…
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Member Profile: KEFI

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The KEFI team at an event to raise cancer awareness.   The Athens Association of Cancer Patients “KEFI” was established in spring 2004 by cancer survivors who decided to dedicate their time and spirit to support cancer patients and…
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Member Profile: Oltre la Ricerca

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The Oltre la Ricerca Team Oltre la ricerca is a non profit organization founded in Rimini (northern Italy) in 2012 by Francesca Gabellini, after the loss of her husband Luca, affected by pancreatic cancer. Luca was 42 years old when he passed…
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Member Profile: Northern Ireland Pancreatic Cancer (NIPanC )

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August 2018 NIPanC launch at The Mater Hospital Belfast attended by Jamie Dornan Patron, James Dornan President & Jess Dornan Lynas   NIPanC was launched in 2018 by our patron, Jamie Dornan, who had himself lost his mother, Lorna,…
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Member Profile: ELLOK

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The Board of ELLOK and representatives of its member organizations met with the President of the Hellenic Republic Prokopios Pavlopoulos.   Hellenic Cancer Federation — ELLOK is an “umbrella” organization established in 2016 aiming…
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Member Profile: EuropaColon Slovakia

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EuropaColon Slovakia was founded in May 2007 as a nonprofit organization for patients with colorectal carcinoma and their families. Epidemiological data for cancer and years of experiences with patients motivated the organization to expand its…
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Member Profile: The Swiss Pancreas Foundation

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The Swiss Pancreas Foundation (SPF), headquartered in Bern, Switzerland, is an independent non-profit providing help for those suffering from pancreatic diseases. Founded in 2007, SPF has the following goals: To advise and inform the Swiss…
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Member Profile: Inspire2Live

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Inspire2Live (I2L), located in the Netherlands, is an international movement founded in 2011 by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action. All these charities are targeted toward…
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Member Profile: #PurpleOurWorld

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Some of the #PurpleOurWorld family with Ambassador Tracey Spicer and Sydney newsreader Peter Overton in front of the Opera House, which turned purple for World Pancreatic Cancer Day!   #PurpleOurWorld was founded in October 2014,…
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Member Profile: WINGS OF HOPE FOR PANCREATIC CANCER RESEARCH

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From left: Cathy Noon, pancreatic cancer survivor; Dr. Marco Del Chiaro, Division Chief, Surgical Oncology Clinical Director, Hepato-Pancreatic-Biliary Program, University of Colorado; Maureen Shul, WINGS OF HOPE founder; and Dr. Richard Schulick,…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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American singer/songwriter Erin Willett with Pancreatic Cancer Awareness Gibraltar Founder Louis Baldachino. Willett traveled to Gibraltar in November 2018 to perform her popular song, “Hope’s Alive,” during the organization’s “Purple…
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Member Profile: Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation

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Front, left to right: Dr. Yolonda Spooner and Bertha Howard. Back, left to right: Sgt. Elvin Howard, Jr., Dr. Peter Bostick, Wendell Mack, Veronica Howard Sizer, Dr. Monteic A. Sizer, and Edward Ball, Jr Elvin Howard, Sr. Pancreatic Cancer…
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Member Profile: Neuroendocrine Cancer Awareness Network

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Supporters at a Neuroendocrine Cancer Awareness Network walk. The Neuroendocrine Cancer Awareness Network (NCAN) was founded in 2003 in New York (U.S.) after founder Maryann Wahmann was diagnosed with a rare neuroendocrine (NET) cancer. Maryann…
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Member Profile: Kenner Family Research Fund

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Kenner Family Research Fund (KFRF) was established in 2013 by family and friends in memory of Peter Kenner, who died just two months following his diagnosis of pancreatic neuroendocrine cancer. KFRF is committed to supporting the development…
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Organizations Around the World Create Change for Pancreatic Cancer

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Coalition members pose for a group shot. Nearly 50 organizations attended the WPCC meeting this year. Nearly 50 organizations from across the world convened in Coral Gables, Fla., May 7-9, 2019 for the fourth annual World Pancreatic Cancer…
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Member Profile: Ron Foley Foundation

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The Ron Foley Foundation, based in Connecticut, USA, was established by Barbara Foley in 2010 in memory of her husband Ron Foley, who died of pancreatic cancer in 2005.   The mission of the Foundation is to alleviate human suffering…
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Member Profile: Avner Pancreatic Cancer Foundation

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The Avner Pancreatic Cancer Foundation’s "Put Your Foot Down" Melbourne walk in May draws a large crowd of supporters. The Avner Pancreatic Cancer Foundation began as Avner’s Fund after co-founder Avner Nahmani was diagnosed with the…
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Member Profile: Europacolon Slovenija

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Members of the EuropaColon Slovenija board of directors EuropaColon Slovenija, founded in 2007, is part of an umbrella organization called Digestive Cancers Europe. It is located in Ljubljana, the capital of Slovenia. As evident from the…
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Member Profile: Project Purple

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Project Purple is a Connecticut-based national nonprofit dedicated to providing financial aid to pancreatic cancer patients and donating research grants to centers with a focus on early detection. Today, the charity is the No. 1 provider…
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Member Profile: Pancare Foundation

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Pancare Foundation in Australia was established in 2011 to improve patient outcomes in a variety of ways. Its flagship event is the Walk for Hope Born out of a desire to see better outcomes for people fighting pancreatic cancer, Australia’s…
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Member Profile: Korean Pancreatic Cancer Network

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Korean Pancreatic Cancer Network (KPCN) was founded in 2015 by pancreatic surgeons in Korea. The organization’s leaders have come to realize that fighting pancreatic cancer in hospitals and operating rooms is not enough. Public awareness of…
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Member Profile: Pancreatic Cancer Asociation In Spain

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The Cities Race against Pancreatic Cancer is a fundraiser for Pancreatic Cancer Asociation in Spain. Pancreatic Cancer Asociation in Spain began in January 2015 in memory of the late Carmen Delgado and Olga Lamarca, both of whom battled pancreatic…
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Member Profile: Nadia Valsecchi Foundation

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Nadia Valsecchi Foundation in Italy was established in 2015. Pictured: A fundraiser event. Nadia Valsecchi Foundation is an Italian organization established in 2015 by the Valsecchi family in memory of Nadia, who lost her battle against pancreatic…
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Member Profile: Pancreatic Cancer UK

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The vision of Pancreatic Cancer UK is that everyone with pancreatic cancer survives to live long and well. Each year, Pancreatic Cancer UK helps thousands of people across the UK by providing information and support, funding world class research…
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Member Profile: The Alliance of Families Fighting Pancreatic Cancer

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From left, back: AFFPC Board member Ric Fera with Dr. A. James Moser, co-director of Pancreas Liver Institute and Pancreatic Cancer Research Program at Beth Israel Deaconess Medical Center and associate professor of surgery, Harvard Medical…
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Member Profile: The John E. Sabga Foundation for Pancreatic Cancer

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Natalie Sabga with her children, Amanda and Matthew, at The HOPE Gala fundraiser in February 2018 for the John E. Sabga Foundation. The John E. Sabga (JES) Foundation for Pancreatic Cancer was founded in November 2017 in Trinidad and Tobago…
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Pancreatic Cancer Coalition Collaborates to Combat World’s Toughest Cancer

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If you look up collaboration in the dictionary, this is what you’ll get: col·lab·o·ra·tion noun 1. the action of working with someone to produce or create something. If you add the World Pancreatic Cancer Coalition’s (WPCC)…
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Member Profile: Pancreatic Cancer Action Network

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Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In our urgent mission to save lives, we attack pancreatic cancer on all fronts: research, clinical initiatives, patient services…
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Member Profile: Pancreatic Cancer Action

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Pancreatic Cancer Action is a UK charity whose aim is to save lives by focusing on improving early diagnosis of pancreatic cancer. The charity was set up by a pancreatic cancer survivor, Ali Stunt, three years after her diagnosis in 2007. …
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Member Profile: Pancreaskreft Nettverk Norge

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Pancreaskreft Nettverk Norge (Norway) was established just over a year ago, following an initiative to arrange a seminar on World Pancreatic Cancer Day (WPCD) 2016. The network was a joint initiative by healthcare personnel, patients…
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Member Profile: Pancreatic Cancer Canada

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Pancreatic Cancer Canada (PCCF) is focused on fighting pancreatic cancer through research, awareness, education and advocacy. Its goals are to improve overall patient survival rates and support those who are affected by this deadly disease.…
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Member Profile: EuropaColon

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EuropaColon was launched in 2004 by Jola Gore Booth, who responded to a call to support colorectal cancer patients outside of the United Kingdom. For the next 10 years, the organization grew across Europe and established a reputation for commitment…
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Global Media Goes Purple on World Pancreatic Cancer Day

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Media outlets across the globe helped raise awareness of the symptoms and risks associated with the world’s toughest cancer on World Pancreatic Cancer Day, inspiring people to take action and Demand Better. For Patients. For Survival. Below…
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World Pancreatic Cancer Coalition Demands Better in New Video

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Several leaders from the World Pancreatic Cancer Coalition (WPCC) are featured in a new video sharing why and how they Demand Better. For Patients. For Survival, today, World Pancreatic Cancer Day. Featured in the video: Julie Fleshman,…
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Swiss Self-Help Organization Pancreatic Diseases

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The SSP Schweizer Selbsthilfeorganisation Pankreaserkrankungen (Swiss Self-Help Organization Pancreatic Diseases) was founded in 1998 by Conrad Rytz to provide medical information concerning pancreatic diseases and the available therapies.…
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Member Profile: JCM Foundation

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Joseph C. Monastra passed away April 4, 2002, only four short weeks after being diagnosed with pancreatic cancer.  In honor of Monastra’s memory, his family established the Joseph C. Monastra (JCM) Foundation for Pancreatic Cancer Research,…
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Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer)

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The first Austrian patient advocacy group dedicated solely to pancreatic cancer, Selbsthilfegruppe Pankreaskarzinom was founded in 2016 by Michaela Hartenstein. Two years after the death of her mom — she was diagnosed with pancreatic cancer…
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Craig’s Cause Pancreatic Cancer Society

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              Since its inception, this grassroots organization has grown into a national charitable society recognized for its national education and awareness campaigns and for supporting…
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Member Profile: TEB e.V. Selbsthilfe (Germany)

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TEB e.V. Selbsthilfe was founded by Katharina Stang in 2006 with the aim of providing support to people with pancreatic diseases and their loved ones, as well as education, advice and assistance for their condition. The German acronym “TEB”…
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Global Meeting Generates Progress, Unity and Inspiration

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Montreal, Canada welcomed more than 80 attendees from more than 20 countries to the second annual World Pancreatic Cancer Coalition (WPCC) meeting May 2 — 5, 2017. “The energy, momentum and enthusiasm at this year’s meeting was extremely…
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Member Profile: Pancreatic Cancer Scotland

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Pancreatic Cancer Scotland was formed in 2010 by a group of patients, caregivers, nurses and doctors in Scotland to share hope, knowledge and action in the battle against pancreatic cancer. The team at Pancreatic Cancer Scotland works…
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Bienvenue au Canada: Montreal Welcomes Our Second Annual Meeting May 2-5

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More than 40 pancreatic cancer member organizations representing 20 countries in our global alliance are expected to attend the second annual World Pancreatic Cancer Coalition (WPCC) meeting next week in host city Montreal, Canada. The two-day…
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LET’S WIN!

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Recognizing that there is an urgent need for pancreatic cancer patients to communicate amongst themselves and with the medical community about potentially life-changing non-standard of care treatments and clinical trials, Let’s Win was launched…
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Member Highlight: The National Pancreas Foundation

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The National Pancreas Foundation (NPF) is celebrating its 20th anniversary, having been created in 1997. The NPF was co-founded by Jane Holt, a pancreatitis patient, and Patter Birsic, who lost her sister-in-law to pancreatic cancer. The…
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Honoring the life of Anne Glauber, co-founder of Coalition member Let’s Win!

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It is with much regret that I share that Anne Glauber, the co-founder of our fellow World Pancreatic Cancer Coalition member, Let’s Win!, died yesterday after a three-year battle with pancreatic cancer.  Our Coalition, and the pancreatic…
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Member Highlight: Pancreatic Cancer Spain

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Pancreatic Cancer Spain was founded in 2014 as a chapter of GEPAC, the Spanish Cancer Patients Group. Its mission is to ensure that pancreatic cancer patients have timely and affordable access to the best treatment and care available, to…
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Member Highlight: Operation Henry Trust

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The Operation Henry Trust, based in England, was founded in 2001 by David Snelling, who wanted to do something to help pancreatic cancer patients after his father was diagnosed. Upon completing the Santiago de Compestela Walk across Spain…
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Member Highlight: Associazione Nastro Viola

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Associazione Nastro Viola (“Purple Ribbon” Charity) was founded in February 2015 by five people who lost family members to pancreatic cancer. None of the founding members had ever experienced a disease so devastating or seen…
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Member Highlight: PanCAN Japan

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PanCAN Japan, headed by President Yoshi Majima and based in Tokyo, was formed in 2006 as an autonomous extension of the Pancreatic Cancer Action Network. Like the U.S.-based Pancreatic Cancer Action Network, PanCAN Japan’s mission is to advance…
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Member Highlight: Pancreasnetvaerket i Danmark

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The Danish pancreatic cancer patient organization Pancreasnetvaerket i Danmark came into being in the spring of 2015, upon the initiative of Mr. and Mrs. Niels-Erik and Gunna Olsen. When Olsen was diagnosed with pancreatic cancer in the fall…
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Member Highlight: Pancreatic Cancer Network South Africa

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Pancreatic Cancer Network South Africa was established in 2014 in honor of Founder Carla Bailey’s late mother and uncle, who both fought the disease bravely. She founded the organization to offer hope and support to those fighting pancreatic…
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After Inaugural Meeting, Focus Shifts to Next Year’s Meeting and World Pancreatic Cancer Day

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The first-ever World Pancreatic Cancer Coalition (WPCC) gathered for its inaugural meeting in Orlando, Fla., May 10-14, bringing together over 50 Coalition members from nearly 20 different countries from around the globe. Though the inaugural…
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Member Profile: IVFB e.V.

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Our Story The initiative for prevention and early detection of pancreatic cancer (IVFB e.V.) was founded in Germany in 2023. The mission of IVFB e.V. is to raise awareness, provide education and advocate for the prevention and early…
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Member Profile: PLANETS Cancer Charity

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Our Story PLANETS started in 2011 with a focus on pancreatic, liver and neuroendocrine tumour patients, initially with small aims to provide support groups and purchase additional equipment for the service. It was quickly realized…
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Member Profile: DOBSLO

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Our Story Their story started in 1986, when the Cancer Patients’ Association of Slovenia (DOBSLO) was launched, first as assistance to women struck with breast cancer. They were granted total support during the time of illness and…
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Member Profile: Pancreatic Cancer Hope Foundation

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  Our Story The Pancreatic Cancer Hope Foundation  is a nonprofit foundation dedicated to raising funding and awareness for pancreatic cancer as well as patient support for patients and their families. They are based out of…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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   Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ…
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Member Profile: Arbeitskreis der Pankreatektomierten e.V. (AdP)

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 Our Story The Arbeitskreis der Pankreatektomierten e. V. (AdP) was founded in 1976 by patients in Heidelberg and has been a registered association since 1979. The AdP is headquartered in Bonn. The AdP will therefore soon be celebrating…
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Member Profile: The Lustgarten Foundation

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Our Story Established in 1998 from a need for better treatment options and outcomes for pancreatic cancer patients and their families, the Lustgarten Foundation continues to accelerate groundbreaking discoveries in understanding,…
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Member Profile: Pancreatic Cancer Aotearoa New Zealand (PCANZ)

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 Our Story PCANZ was founded in 2019, after their founder lost their Dad to pancreatic cancer.   The main areas of focus for PCANZ is support, education, awareness and fundraising. Currently, PCANZ is helping…
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Member Profile: Hirshberg Foundation for Pancreatic Cancer Research

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In 1997, the Hirshberg Foundation was established to fund groundbreaking scientific research, provide patient education and support, and sustain the hope that this cancer will be eradicated once and for all. To date, four of its five goals…
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Member Profile: The Purple Iris Foundation

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The Purple Iris Foundation, established in 2012 by Christina Parrish, a 16 year survivor of Stage 4 Pancreatic Cancer, is a registered 501(c)(3) organization based in Brewer, Maine. Ongoing Projects The Purple Iris Foundation's dedicated…
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Member Profile: Kelly’s Heroes

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Kelly’s Heroes, founded in 2016, gives pancreatic cancer patients hope to live with pancreatic cancer. Their work is inspired by Steve Kelly, an editor at the Philadelphia Inquirer, much-loved family man and friend to many. After he was…
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Luigino Sala, with a beloved landscape of mountains, the founder of My Everest.

Member Profile: My Everest ODV

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My Everest ODV, standing for "Organizzazione di Volontariato" (Voluntary Organization), is a non-profit association based in Rivolta D'Adda, Italy. Established in 2015 from the idea of Luigino Sala, who was sadly dying of pancreatic cancer,…
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Member Profile: Cancer Society PALEMA

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Cancer Society PALEMA was founded in 2015. People from the cancer profession took the initiative to start PALEMA as there was no association for these diagnoses to which they could refer their patients. They have two areas of focus: First…
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Member Profile: #PurpleOurWorld

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#PurpleOurWorld was founded in October 2014, after the death of wife, mom and sister Rochelle Goulburn. To coincide with the inaugural World Pancreatic Cancer Day, they asked everyone we knew to wear purple and share a picture on social media…
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Member Profile: NIPANC

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Northern Ireland Pancreatic Cancer (NIPANC) was set up in August 2018 and has its roots in a group of people affected by pancreatic cancer coming together for support and to raise funds to promote better diagnosis and treatment for future patients.…
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Member Profile: The Elizabeth Coteman Fund

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  The Elizabeth Coteman Fund was established in 2010 upon the death of beloved wife and mother Elizabeth Coteman from pancreatic cancer, to support those with a diagnosis of pancreatic cancer and their families. The charity also provides…
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Member Profile: Pancreatic Cancer Ireland

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Pancreatic Cancer Ireland was founded in September 2022 by Rachel Duquesnois shortly after losing her wonderful mother, Martina Dunne, to pancreatic cancer. Unfortunately this was not the first time the family was impacted, with two other relatives…
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Member Profile: National Pancreatic Cancer Foundation

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In 2009, Rhonda Williams established the National Pancreatic Cancer Foundation following the tragic loss of a family member to pancreatic cancer. This unfortunate event highlighted the insufficient awareness and funding dedicated to pancreatic…
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Member Profile: Europacolon Portugal

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About Europacolon Portugal Europacolon Portugal, Association for the Support of Patients with Digestive Cancer, is a Private Institution of Social Solidarity, founded in 2006, in Porto, Portugal. They have a total of 1,500 Associates across…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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Pancreatic Cancer Awareness Gibraltar Charitable Trust was founded in February 2018 with a total focus on raising awareness about pancreatic cancer to the public, general practitioners, and other medical professionals in Gibraltar, as well as,…
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Member Profile: Lavlav Foundation

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In 2019, we attended the WPCC Annual Meeting in Miami for the first time. This was our initial exposure to the incredible work of the foundations that help pancreatic cancer patients and their families. As a result, we quickly realized that…
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Member Profile: Pants Off Racing

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History Pants Off Racing (“POR”) was founded in 2012. Our organization had been active for many years before, but we didn’t register as a 501c3 until 2012. POR was formed because Nancy “Pants” Amato was diagnosed with pancreatic…
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Member Profile: Let’s Win Pancreatic Cancer

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WPCC story Let’s Win Pancreatic Cancer is an online platform that breaks down barriers between patients, doctors, and researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the…
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Member Profile: DiCE

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Digestive Cancers Europe (DiCE) is a European non-profit umbrella organization of nearly 40 national Member Organizations representing patients with digestive cancer — colorectal, gastric, liver, oesophageal, pancreatic, and rare cancers. DiCE…
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Member Profile: The John E. Sabga Foundation

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The John E. Sabga Foundation is a non-profit foundation started in Trinidad and Tobago. The Foundation honors John Edmond Sabga who died at the age of 56 in January 2017 after a valiant 10-month battle with pancreatic cancer. John was a well-loved…
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Member Profile: The Griffith Family Foundation & Sideline Cancer

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The history of the Griffith Family Foundation is a tragic but inspiring chapter in the story of Greg and Cathy Griffith. Greg passed at age 50 after a heroic 19-month battle with pancreatic cancer. It was two family friends — siblings, Amanda…
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Member Profile: The Korean Pancreatic Cancer Network

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In 2015, the Korean Pancreatic Cancer Network (KPCN) was founded by a group of pancreatic surgeons in Korea with the common goal of increasing social awareness of pancreatic cancer. The mission of the KPCN is to promote prevention and early…
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Member Profile: Associazione Nastro Viola

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Associazione Nastro Viola was founded in February 2015 by Francesca Mella and four other people that all lost relatives to pancreatic cancer. At the time, none of them had heard of pancreatic cancer and were shocked when they lost their family…
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Member Profile: The Gastrointestinal Society

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The GI (Gastrointestinal) Society is a national charity formed in 2008 on the groundwork of its partner organization, the Canadian Society of Intestinal Research (CSIR), which was founded in Vancouver in 1976. We receive national and international…
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Member Profile: PanKind

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About PanKind PanKind, The Australian Pancreatic Cancer Foundation, is exclusively dedicated to pancreatic cancer with a mission to triple the survival rate by 2030 and dramatically increase the quality of life for patients and their families.…
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Member Profile: The Rolfe Pancreatic Cancer Foundation

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The Rolfe Pancreatic Cancer Foundation was founded in 1999 by friends and family in honor of Michael Rolfe. What started in a living room as a small, community effort has grown into an impactful organization in the Midwest and together we are…
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Member Profile: Fondation A.R.CA.D.

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Fondation A.R.CA.D. was founded in France in 2006 by Pr Aimery de Gramont and granted the legal status of "publicly recognized foundation" by the French government in December of the same year. While there are a number of major organizations…
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Member Profile: Robert E. Reed Gastrointestinal Oncology Research Foundation

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Pictured above: The 2021-2022 Reed GI Foundation Junior Board The Robert E. Reed Gastrointestinal Oncology Research Foundation was formed in 2002 while Robert Reed was battling pancreatic cancer. Mr. Reed felt strongly that creating a focus…
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Member Profile: EuropaColon Poland

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Pictured Above: Founder Iga Rawicka EuropaColon Polska was established in March of 2017 and is an affiliate member of Digestive Cancers Europe. Our goal is to increase awareness of digestive cancers amongst the general public. Previously…
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Member Profile: Charlotte Pancreatic Cancer Alliance

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Latest research shows that 97% of Americans now have a smartphone.  This represents nearly 300 million devices and a level of connectivity never seen before. Yet despite this unprecedented level of connectivity and access to information,…
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Member Profile: Dawn Hill Fight Foundation

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Pictured above: Participants in the annual Dawn’s 5k Dash In 2016, Dawn Hill was diagnosed with Stage 4 pancreatic cancer at the age of 47. After obtaining a second option, she began a clinical trial at Johns Hopkins Hospital in Baltimore,…
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Member Profile: RicerChiAmo Onlus

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One of the founders of RicerChiAmo Onlus, Gian Luca Baiocchi, speaking at their annual Fun for Charity event in 2019. RicerChiAmo Onlus is based in Brescia, Italy, and was founded in 2016 by Gian Luca Baiocchi (ASST Spedali Civili di Bescia…
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Member Profile: PASYKAF

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PASYKAF Staff Group Photo PASYKAF, The Cyprus Association of Cancer Patients and Friends was founded in 1986, by 21 people with cancer experience. The voice of our association was first heard through the words of Dr Anna Achilleoudi, founder…
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Member Profile: Michael W. Oglesby Foundation

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Participants in Michael W. Oglesby Foundation’s annual Faj Squad 5k walk/run that has raised over $40,000 for pancreatic cancer research in the last 5 years. When and why was your organization founded? Our brother, Mike, was born and…
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Member Profile: EuropaColon Portugal

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EuropaColon Portugal was created in 2006 in Porto with the primary function to help reduce the number of deaths from intestinal cancer and to provide support to patients and family members and improve their quality of life. Objectives…
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Member Profile: PanKind

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PanKind unites the nation with their flagship Put Your Foot Down walks in 7 cities across Australia Avner Nahmani and his wife Caroline established the Foundation in 2007 after Avner was diagnosed with inoperable pancreatic cancer. Caroline,…
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Member Profile: The Gastrointestinal Society

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The Gastrointestinal Society is a Canadian registered charity that has roots in its partner organization, the Canadian Society of Intestinal Research (CSIR), founded in 1976 in Vancouver, British Columbia. Our organizations work together providing…
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Member Profile: The Seena Magowitz Foundation

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Roger Magowitz started the Seena Magowitz Foundation in 2002 to honor his mother, Seena Magowitz. Since then, the Foundation has raised over twelve million dollars for pancreatic cancer research. The $12 Million primarily has funded Pilot Studies…
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Member Profile: Purple Pansies

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Purple Pansies team during their 2020 virtual gala event that raised over $1.2 million. Their motto for the gala was, "Cancer Doesn’t Stop and Neither Do We." Purple Pansies was founded in 2009 following the death of Maria Fundora’s mother…
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Member Profile: Asociación Cáncer de Páncreas (ACANPAN)

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For the fifth consecutive year, the Pancreatic Cancer Association (ACANPAN) and the Spanish Pancreatology Association (AESPANC) announce the Carmen Delgado / Miguel Pérez-Mateo Research Grants against pancreatic cancer. Asociacià³n Cà¡ncer…
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Member Profile: LoveLove

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Israeli team running to defeat Pancreatic Cancer. The Israeli Association for Pancreatic Cancer is a non-profit organization. The association was founded in August 2019, by a group of volunteers who have been exposed to pancreatic cancer, in…
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Member Profile: KEFI

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The KEFI team at an event to raise cancer awareness.   The Athens Association of Cancer Patients “KEFI” was established in spring 2004 by cancer survivors who decided to dedicate their time and spirit to support cancer patients and…
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Member Profile: Oltre la Ricerca

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The Oltre la Ricerca Team Oltre la ricerca is a non profit organization founded in Rimini (northern Italy) in 2012 by Francesca Gabellini, after the loss of her husband Luca, affected by pancreatic cancer. Luca was 42 years old when he passed…
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Member Profile: Northern Ireland Pancreatic Cancer (NIPanC )

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August 2018 NIPanC launch at The Mater Hospital Belfast attended by Jamie Dornan Patron, James Dornan President & Jess Dornan Lynas   NIPanC was launched in 2018 by our patron, Jamie Dornan, who had himself lost his mother, Lorna,…
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Member Profile: ELLOK

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The Board of ELLOK and representatives of its member organizations met with the President of the Hellenic Republic Prokopios Pavlopoulos.   Hellenic Cancer Federation — ELLOK is an “umbrella” organization established in 2016 aiming…
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Member Profile: EuropaColon Slovakia

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EuropaColon Slovakia was founded in May 2007 as a nonprofit organization for patients with colorectal carcinoma and their families. Epidemiological data for cancer and years of experiences with patients motivated the organization to expand its…
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Member Profile: The Swiss Pancreas Foundation

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The Swiss Pancreas Foundation (SPF), headquartered in Bern, Switzerland, is an independent non-profit providing help for those suffering from pancreatic diseases. Founded in 2007, SPF has the following goals: To advise and inform the Swiss…
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Member Profile: Inspire2Live

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Inspire2Live (I2L), located in the Netherlands, is an international movement founded in 2011 by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action. All these charities are targeted toward…
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Member Profile: #PurpleOurWorld

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Some of the #PurpleOurWorld family with Ambassador Tracey Spicer and Sydney newsreader Peter Overton in front of the Opera House, which turned purple for World Pancreatic Cancer Day!   #PurpleOurWorld was founded in October 2014,…
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Member Profile: WINGS OF HOPE FOR PANCREATIC CANCER RESEARCH

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From left: Cathy Noon, pancreatic cancer survivor; Dr. Marco Del Chiaro, Division Chief, Surgical Oncology Clinical Director, Hepato-Pancreatic-Biliary Program, University of Colorado; Maureen Shul, WINGS OF HOPE founder; and Dr. Richard Schulick,…
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Member Profile: Pancreatic Cancer Awareness Gibraltar Charitable Trust

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American singer/songwriter Erin Willett with Pancreatic Cancer Awareness Gibraltar Founder Louis Baldachino. Willett traveled to Gibraltar in November 2018 to perform her popular song, “Hope’s Alive,” during the organization’s “Purple…
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Member Profile: Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation

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Front, left to right: Dr. Yolonda Spooner and Bertha Howard. Back, left to right: Sgt. Elvin Howard, Jr., Dr. Peter Bostick, Wendell Mack, Veronica Howard Sizer, Dr. Monteic A. Sizer, and Edward Ball, Jr Elvin Howard, Sr. Pancreatic Cancer…
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Member Profile: Neuroendocrine Cancer Awareness Network

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Supporters at a Neuroendocrine Cancer Awareness Network walk. The Neuroendocrine Cancer Awareness Network (NCAN) was founded in 2003 in New York (U.S.) after founder Maryann Wahmann was diagnosed with a rare neuroendocrine (NET) cancer. Maryann…
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Member Profile: Kenner Family Research Fund

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Kenner Family Research Fund (KFRF) was established in 2013 by family and friends in memory of Peter Kenner, who died just two months following his diagnosis of pancreatic neuroendocrine cancer. KFRF is committed to supporting the development…
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Organizations Around the World Create Change for Pancreatic Cancer

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Coalition members pose for a group shot. Nearly 50 organizations attended the WPCC meeting this year. Nearly 50 organizations from across the world convened in Coral Gables, Fla., May 7-9, 2019 for the fourth annual World Pancreatic Cancer…
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Member Profile: Ron Foley Foundation

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The Ron Foley Foundation, based in Connecticut, USA, was established by Barbara Foley in 2010 in memory of her husband Ron Foley, who died of pancreatic cancer in 2005.   The mission of the Foundation is to alleviate human suffering…
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Member Profile: Avner Pancreatic Cancer Foundation

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The Avner Pancreatic Cancer Foundation’s "Put Your Foot Down" Melbourne walk in May draws a large crowd of supporters. The Avner Pancreatic Cancer Foundation began as Avner’s Fund after co-founder Avner Nahmani was diagnosed with the…
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Member Profile: Europacolon Slovenija

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Members of the EuropaColon Slovenija board of directors EuropaColon Slovenija, founded in 2007, is part of an umbrella organization called Digestive Cancers Europe. It is located in Ljubljana, the capital of Slovenia. As evident from the…
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Member Profile: Project Purple

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Project Purple is a Connecticut-based national nonprofit dedicated to providing financial aid to pancreatic cancer patients and donating research grants to centers with a focus on early detection. Today, the charity is the No. 1 provider…
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Member Profile: Pancare Foundation

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Pancare Foundation in Australia was established in 2011 to improve patient outcomes in a variety of ways. Its flagship event is the Walk for Hope Born out of a desire to see better outcomes for people fighting pancreatic cancer, Australia’s…
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Member Profile: Korean Pancreatic Cancer Network

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Korean Pancreatic Cancer Network (KPCN) was founded in 2015 by pancreatic surgeons in Korea. The organization’s leaders have come to realize that fighting pancreatic cancer in hospitals and operating rooms is not enough. Public awareness of…
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Member Profile: Pancreatic Cancer Asociation In Spain

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The Cities Race against Pancreatic Cancer is a fundraiser for Pancreatic Cancer Asociation in Spain. Pancreatic Cancer Asociation in Spain began in January 2015 in memory of the late Carmen Delgado and Olga Lamarca, both of whom battled pancreatic…
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Member Profile: Nadia Valsecchi Foundation

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Nadia Valsecchi Foundation in Italy was established in 2015. Pictured: A fundraiser event. Nadia Valsecchi Foundation is an Italian organization established in 2015 by the Valsecchi family in memory of Nadia, who lost her battle against pancreatic…
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Member Profile: Pancreatic Cancer UK

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The vision of Pancreatic Cancer UK is that everyone with pancreatic cancer survives to live long and well. Each year, Pancreatic Cancer UK helps thousands of people across the UK by providing information and support, funding world class research…
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Member Profile: The Alliance of Families Fighting Pancreatic Cancer

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From left, back: AFFPC Board member Ric Fera with Dr. A. James Moser, co-director of Pancreas Liver Institute and Pancreatic Cancer Research Program at Beth Israel Deaconess Medical Center and associate professor of surgery, Harvard Medical…
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Member Profile: The John E. Sabga Foundation for Pancreatic Cancer

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Natalie Sabga with her children, Amanda and Matthew, at The HOPE Gala fundraiser in February 2018 for the John E. Sabga Foundation. The John E. Sabga (JES) Foundation for Pancreatic Cancer was founded in November 2017 in Trinidad and Tobago…
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Pancreatic Cancer Coalition Collaborates to Combat World’s Toughest Cancer

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If you look up collaboration in the dictionary, this is what you’ll get: col·lab·o·ra·tion noun 1. the action of working with someone to produce or create something. If you add the World Pancreatic Cancer Coalition’s (WPCC)…
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Member Profile: Pancreatic Cancer Action Network

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Founded in 1999, the Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. In our urgent mission to save lives, we attack pancreatic cancer on all fronts: research, clinical initiatives, patient services…
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Member Profile: Pancreatic Cancer Action

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Pancreatic Cancer Action is a UK charity whose aim is to save lives by focusing on improving early diagnosis of pancreatic cancer. The charity was set up by a pancreatic cancer survivor, Ali Stunt, three years after her diagnosis in 2007. …
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Member Profile: Pancreaskreft Nettverk Norge

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Pancreaskreft Nettverk Norge (Norway) was established just over a year ago, following an initiative to arrange a seminar on World Pancreatic Cancer Day (WPCD) 2016. The network was a joint initiative by healthcare personnel, patients…
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Member Profile: Pancreatic Cancer Canada

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Pancreatic Cancer Canada (PCCF) is focused on fighting pancreatic cancer through research, awareness, education and advocacy. Its goals are to improve overall patient survival rates and support those who are affected by this deadly disease.…
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Member Profile: EuropaColon

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EuropaColon was launched in 2004 by Jola Gore Booth, who responded to a call to support colorectal cancer patients outside of the United Kingdom. For the next 10 years, the organization grew across Europe and established a reputation for commitment…
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Global Media Goes Purple on World Pancreatic Cancer Day

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Media outlets across the globe helped raise awareness of the symptoms and risks associated with the world’s toughest cancer on World Pancreatic Cancer Day, inspiring people to take action and Demand Better. For Patients. For Survival. Below…
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World Pancreatic Cancer Coalition Demands Better in New Video

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Several leaders from the World Pancreatic Cancer Coalition (WPCC) are featured in a new video sharing why and how they Demand Better. For Patients. For Survival, today, World Pancreatic Cancer Day. Featured in the video: Julie Fleshman,…
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Swiss Self-Help Organization Pancreatic Diseases

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The SSP Schweizer Selbsthilfeorganisation Pankreaserkrankungen (Swiss Self-Help Organization Pancreatic Diseases) was founded in 1998 by Conrad Rytz to provide medical information concerning pancreatic diseases and the available therapies.…
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Member Profile: JCM Foundation

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Joseph C. Monastra passed away April 4, 2002, only four short weeks after being diagnosed with pancreatic cancer.  In honor of Monastra’s memory, his family established the Joseph C. Monastra (JCM) Foundation for Pancreatic Cancer Research,…
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Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer)

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The first Austrian patient advocacy group dedicated solely to pancreatic cancer, Selbsthilfegruppe Pankreaskarzinom was founded in 2016 by Michaela Hartenstein. Two years after the death of her mom — she was diagnosed with pancreatic cancer…
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Craig’s Cause Pancreatic Cancer Society

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              Since its inception, this grassroots organization has grown into a national charitable society recognized for its national education and awareness campaigns and for supporting…
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Member Profile: TEB e.V. Selbsthilfe (Germany)

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TEB e.V. Selbsthilfe was founded by Katharina Stang in 2006 with the aim of providing support to people with pancreatic diseases and their loved ones, as well as education, advice and assistance for their condition. The German acronym “TEB”…
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Global Meeting Generates Progress, Unity and Inspiration

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Montreal, Canada welcomed more than 80 attendees from more than 20 countries to the second annual World Pancreatic Cancer Coalition (WPCC) meeting May 2 — 5, 2017. “The energy, momentum and enthusiasm at this year’s meeting was extremely…
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Member Profile: Pancreatic Cancer Scotland

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Pancreatic Cancer Scotland was formed in 2010 by a group of patients, caregivers, nurses and doctors in Scotland to share hope, knowledge and action in the battle against pancreatic cancer. The team at Pancreatic Cancer Scotland works…
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Bienvenue au Canada: Montreal Welcomes Our Second Annual Meeting May 2-5

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More than 40 pancreatic cancer member organizations representing 20 countries in our global alliance are expected to attend the second annual World Pancreatic Cancer Coalition (WPCC) meeting next week in host city Montreal, Canada. The two-day…
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LET’S WIN!

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Recognizing that there is an urgent need for pancreatic cancer patients to communicate amongst themselves and with the medical community about potentially life-changing non-standard of care treatments and clinical trials, Let’s Win was launched…
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Member Highlight: The National Pancreas Foundation

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The National Pancreas Foundation (NPF) is celebrating its 20th anniversary, having been created in 1997. The NPF was co-founded by Jane Holt, a pancreatitis patient, and Patter Birsic, who lost her sister-in-law to pancreatic cancer. The…
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Honoring the life of Anne Glauber, co-founder of Coalition member Let’s Win!

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It is with much regret that I share that Anne Glauber, the co-founder of our fellow World Pancreatic Cancer Coalition member, Let’s Win!, died yesterday after a three-year battle with pancreatic cancer.  Our Coalition, and the pancreatic…
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Member Highlight: Pancreatic Cancer Spain

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Pancreatic Cancer Spain was founded in 2014 as a chapter of GEPAC, the Spanish Cancer Patients Group. Its mission is to ensure that pancreatic cancer patients have timely and affordable access to the best treatment and care available, to…
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Member Highlight: Operation Henry Trust

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The Operation Henry Trust, based in England, was founded in 2001 by David Snelling, who wanted to do something to help pancreatic cancer patients after his father was diagnosed. Upon completing the Santiago de Compestela Walk across Spain…
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Member Highlight: Associazione Nastro Viola

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Associazione Nastro Viola (“Purple Ribbon” Charity) was founded in February 2015 by five people who lost family members to pancreatic cancer. None of the founding members had ever experienced a disease so devastating or seen…
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Member Highlight: PanCAN Japan

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PanCAN Japan, headed by President Yoshi Majima and based in Tokyo, was formed in 2006 as an autonomous extension of the Pancreatic Cancer Action Network. Like the U.S.-based Pancreatic Cancer Action Network, PanCAN Japan’s mission is to advance…
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Member Highlight: Pancreasnetvaerket i Danmark

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The Danish pancreatic cancer patient organization Pancreasnetvaerket i Danmark came into being in the spring of 2015, upon the initiative of Mr. and Mrs. Niels-Erik and Gunna Olsen. When Olsen was diagnosed with pancreatic cancer in the fall…
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Member Highlight: Pancreatic Cancer Network South Africa

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Pancreatic Cancer Network South Africa was established in 2014 in honor of Founder Carla Bailey’s late mother and uncle, who both fought the disease bravely. She founded the organization to offer hope and support to those fighting pancreatic…
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After Inaugural Meeting, Focus Shifts to Next Year’s Meeting and World Pancreatic Cancer Day

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The first-ever World Pancreatic Cancer Coalition (WPCC) gathered for its inaugural meeting in Orlando, Fla., May 10-14, bringing together over 50 Coalition members from nearly 20 different countries from around the globe. Though the inaugural…
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